Guest guest Posted May 11, 2003 Report Share Posted May 11, 2003 Hi Gruop, This just does not sound right to me,does anyone have any thoughts to offer? My friend's daughter,age 16,has been sick and deteriorating since October.I'll try to get the timeline right here.In October,they thought she had mono-neucleosis....tired all the time,no energy.Treatment with antibiotics not effective. Then,around Christmas,they began treating for asthma....inhalers,nebulizers,oral pills of some kind...She got worse,and they discovered fluid in her brain from too much antihistimine(?).Cleared brain fluid,somehow.... She went to Children's Hospital in Rochester where they think she may have fibromaylgia.Gave her a transfusion,and she seemed better for a while.Local Rhumeatoligist doesn't tink it's fibro,but declines to comment on what it may be without seeing records from Rochester....2+ weeks waiting on records! Meanwhile,this child is in a wheelchair,has terrible hip spazms,her heart races,her hands are all curling up like fetal position or paralisis,and she can't lift head to sip fluids!My friend is convinced that the child will die any minute now. They have been to a few specialists,emergency rooms,...nobody can tell them anything! I should mention,they have the NY State child health care plan.....very minimal providers that participate,and long waiting lists to be seen. I was hoping someone in this group would see a red-flag,and give me some kind of clue what to have her ask the docs,or see some symptoms that point to a different diagnosis or disease. Thanks,and Happy Mothers Day to All, Jenny G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2003 Report Share Posted May 11, 2003 in response to your obvious compassion, i am going to nominally refer you to another much more lateralized healing group. they are radical, but all encompassing in the range of healing suggestions. punch in tracy's corner into your search engine, pose your question there if you like, and i suspect you will get some thought provoking responses. gods light to her and you - " scenicdr2001 " <jbreen75 Sunday, May 11, 2003 10:36 AM fibromyalgia in teenager...? > Hi Gruop, > This just does not sound right to me,does anyone have any thoughts > to offer? > My friend's daughter,age 16,has been sick and deteriorating since > October.I'll try to get the timeline right here.In October,they > thought she had mono-neucleosis....tired all the time,no > energy.Treatment with antibiotics not effective. > Then,around Christmas,they began treating for > asthma....inhalers,nebulizers,oral pills of some kind...She got > worse,and they discovered fluid in her brain from too much > antihistimine(?).Cleared brain fluid,somehow.... > She went to Children's Hospital in Rochester where they think she > may have fibromaylgia.Gave her a transfusion,and she seemed better > for a while.Local Rhumeatoligist doesn't tink it's fibro,but declines > to comment on what it may be without seeing records from > Rochester....2+ weeks waiting on records! > Meanwhile,this child is in a wheelchair,has terrible hip spazms,her > heart races,her hands are all curling up like fetal position or > paralisis,and she can't lift head to sip fluids!My friend is > convinced that the child will die any minute now. > They have been to a few specialists,emergency rooms,...nobody can > tell them anything! I should mention,they have the NY State child > health care plan.....very minimal providers that participate,and long > waiting lists to be seen. > I was hoping someone in this group would see a red-flag,and give me > some kind of clue what to have her ask the docs,or see some symptoms > that point to a different diagnosis or disease. > Thanks,and Happy Mothers Day to All, > Jenny G. > > > > > Getting well is done one step at a time, day by day, building health and well being. > > list or archives: Gettingwell > > ........ Gettingwell- > post............. Gettingwell > digest form...... Gettingwell-digest > individual emails Gettingwell-normal > no email......... Gettingwell-nomail > moderator ....... Gettingwell-owner > ...... Gettingwell- > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2003 Report Share Posted May 12, 2003 Jenny, Hi! I usually don't give any input on this group but felt the need to jump in here. Your friend's daughters symptoms do not sound like fibromyalgia to me. I've met many people with it and they did not have the severe symptoms she is having. Wish I could tell you what I thought it was but I don't know. If it were my child I would immediately go to a health food store and purchase RM10 from Garden Of Life. (I work in a health food store in Williamsville, NY and have customers who are taking this with tremendous benefit.) I've never tried the products yet myself except for the Perfect Food I've had in a few green juices. The RM10 is for the immune system specifically. Again, if it were me or my child, I wouldn't wait for the doctors to find the problem, I would start rebuilding the immune system right away. Please do some research on it and also maybe someone else on this board can comment on the products. I've yet to here anything negative about them. According to the Garden Of Life website: The following health conditions may be a direct result of immune system dysfunction: a.. Frequent Colds and Flu b.. Allergies and Asthma c.. Chronic Fatigue d.. Fibromyalgia e.. Candida Yeast Overgrowth f.. Parasitic Infections g.. Psoriasis and Eczema h.. Rheumatoid Arthritis i.. Viral Disorders j.. Inflammatory Bowel Disease k.. Hepatitis l.. cancer m.. Diabetes n.. Multiple Sclerosis o.. AIDS p.. Lupus Maybe it can help. Beth B. - scenicdr2001 Gettingwell Sunday, May 11, 2003 10:36 AM fibromyalgia in teenager...? Hi Gruop, This just does not sound right to me,does anyone have any thoughts to offer? My friend's daughter,age 16,has been sick and deteriorating since October.<----> I was hoping someone in this group would see a red-flag,and give me some kind of clue what to have her ask the docs,or see some symptoms that point to a different diagnosis or disease. Thanks,and Happy Mothers Day to All, Jenny G. Getting well is done one step at a time, day by day, building health and well being. list or archives: Gettingwell ........ Gettingwell- post............. Gettingwell digest form...... Gettingwell-digest individual emails Gettingwell-normal no email......... Gettingwell-nomail moderator ....... Gettingwell-owner ...... Gettingwell- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2003 Report Share Posted May 12, 2003 Almost Always--------there is no info on what the sick person has been eating. Lorenzo >Hi Gruop, This just does not sound right to me,does anyone have any thoughts to offer? My friend's daughter,age 16,has been sick and deteriorating since October.I'll try to get the timeline right here.In October,they thought she had mono-neucleosis....tired all the time,no energy.Treatment with antibiotics not effective. Then,around Christmas,they began treating for asthma....inhalers,nebulizers,oral pills of some kind...She got ............................................................................. ............................................................................. .. --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.478 / Virus Database: 275 - Release 5/6/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2003 Report Share Posted May 13, 2003 Jenny Im 33 and the best help I got for my fibromyalgia was from Russ at www.naturalhealingsolutions.com site. Not only did I get rid of my candida infection in less than 30 days but my fibro pain has not returned. Nina Gettingwell , " scenicdr2001 " <jbreen75@a...> wrote: > Hi Gruop, > This just does not sound right to me,does anyone have any thoughts > to offer? > My friend's daughter,age 16,has been sick and deteriorating since > October.I'll try to get the timeline right here.In October,they > thought she had mono-neucleosis....tired all the time,no > energy.Treatment with antibiotics not effective. > Then,around Christmas,they began treating for > asthma....inhalers,nebulizers,oral pills of some kind...She got > worse,and they discovered fluid in her brain from too much > antihistimine(?).Cleared brain fluid,somehow.... > She went to Children's Hospital in Rochester where they think she > may have fibromaylgia.Gave her a transfusion,and she seemed better > for a while.Local Rhumeatoligist doesn't tink it's fibro,but declines > to comment on what it may be without seeing records from > Rochester....2+ weeks waiting on records! > Meanwhile,this child is in a wheelchair,has terrible hip spazms,her > heart races,her hands are all curling up like fetal position or > paralisis,and she can't lift head to sip fluids!My friend is > convinced that the child will die any minute now. > They have been to a few specialists,emergency rooms,...nobody can > tell them anything! I should mention,they have the NY State child > health care plan.....very minimal providers that participate,and long > waiting lists to be seen. > I was hoping someone in this group would see a red-flag,and give me > some kind of clue what to have her ask the docs,or see some symptoms > that point to a different diagnosis or disease. > Thanks,and Happy Mothers Day to All, > Jenny G. Quote Link to comment Share on other sites More sharing options...
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