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Fibromyalgia--an addendum to the MS convo

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I recollect from my readings also that fibro, MS, and a couple other things are

commonly diagnosed for each other. I try to make sure to notify folks who have

told me they have fibro of another acquaintance I had that was being treated for

a few years for fibro with no relief. When she switched docs, the new doc

tested for Lyme's disease. She was positive, and experienced immediate easing

of her pain when she started treatment for Lyme Disease. Something else to keep

tucked in the back of the brain.

 

Jessica, NC

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Jessica from NC wisely stated: I recollect from my readings also that fibro,

MS, and a couple other things are commonly diagnosed for each other. I try

to make sure to notify folks who have told me they have fibro of another

acquaintance I had that was being treated for a few years for fibro with no

relief. When she switched docs, the new doc tested for Lyme's disease. She

was positive, and experienced immediate easing of her pain when she started

treatment for Lyme Disease. Something else to keep tucked in the back of

the brain.

 

My response: An easy enough mistake to make. Fibro, Lyme, Mono, Lupus, and

MS all have positive Epstein Barr titers. I had EB titers after a tick bite

in 2001 and was given a round of antibiotics as a " just in case " for Lyme.

Then I came down with CFS and the Fibro in quick succession. I was told then

that essentially Fibro was the " diagnosis by elimination " -- eliminate all

the other options (including leukemia) and Fibro is what you have left. But,

they've come a ways since then and I've not kept up on the latest diagnostic

processes. Just glad I have a way to avoid the symptoms without medications.

:-)

 

Tina in NC

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Hi! thanks Tina, Jessica, Anya and everyone else for all the messages, I am

still catching up on email.

 

She has definitely " MS " as she has a " certain number of brain lesions " or

something like that, the current test I believe.

 

But lots of the symptoms are the same as other conditions, I agree they all may

be misdiagnosed.

 

Anyway thanks so much for the recommendations- feel free to send me a link to a

product you may have or know of so she can order to try.

 

Sylla

 

 

 

 

 

-

Tina Paxton

ATFE

Thursday, March 25, 2010 9:43 PM

RE: Fibromyalgia--an addendum to the MS convo

 

 

 

Jessica from NC wisely stated: I recollect from my readings also that fibro,

MS, and a couple other things are commonly diagnosed for each other. I try

to make sure to notify folks who have told me they have fibro of another

acquaintance I had that was being treated for a few years for fibro with no

relief. When she switched docs, the new doc tested for Lyme's disease. She

was positive, and experienced immediate easing of her pain when she started

treatment for Lyme Disease. Something else to keep tucked in the back of

the brain.

 

My response: An easy enough mistake to make. Fibro, Lyme, Mono, Lupus, and

MS all have positive Epstein Barr titers. I had EB titers after a tick bite

in 2001 and was given a round of antibiotics as a " just in case " for Lyme.

Then I came down with CFS and the Fibro in quick succession. I was told then

that essentially Fibro was the " diagnosis by elimination " -- eliminate all

the other options (including leukemia) and Fibro is what you have left. But,

they've come a ways since then and I've not kept up on the latest diagnostic

processes. Just glad I have a way to avoid the symptoms without medications.

:-)

 

Tina in NC

 

 

 

 

 

 

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Get tested for Celiacs disease/gluten intolerance. Try to get more sunshine

(responsibly) for Vit. D & quit eating grains. See how she feels in a couple

months. I am not a medical person but I am gluten intolerant. There's also a

technique called EFT (emotional freedom technique) by Gary Craig. Good Luck!

 

--- On Sat, 3/27/10, Sylla S. Hanger <sylla wrote:

 

Sylla S. Hanger <sylla

Re: Fibromyalgia--an addendum to the MS convo

ATFE

Saturday, March 27, 2010, 11:15 AM

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Hi! thanks Tina, Jessica, Anya and everyone else for all the messages, I

am still catching up on email.

 

 

 

She has definitely " MS " as she has a " certain number of brain lesions " or

something like that, the current test I believe.

 

 

 

But lots of the symptoms are the same as other conditions, I agree they all may

be misdiagnosed.

 

 

 

Anyway thanks so much for the recommendations- feel free to send me a link to a

product you may have or know of so she can order to try.

 

 

 

Sylla

 

 

 

-

 

Tina Paxton

 

ATFE

 

Thursday, March 25, 2010 9:43 PM

 

RE: Fibromyalgia- -an addendum to the MS convo

 

 

 

Jessica from NC wisely stated: I recollect from my readings also that fibro,

 

MS, and a couple other things are commonly diagnosed for each other. I try

 

to make sure to notify folks who have told me they have fibro of another

 

acquaintance I had that was being treated for a few years for fibro with no

 

relief. When she switched docs, the new doc tested for Lyme's disease. She

 

was positive, and experienced immediate easing of her pain when she started

 

treatment for Lyme Disease. Something else to keep tucked in the back of

 

the brain.

 

 

 

My response: An easy enough mistake to make. Fibro, Lyme, Mono, Lupus, and

 

MS all have positive Epstein Barr titers. I had EB titers after a tick bite

 

in 2001 and was given a round of antibiotics as a " just in case " for Lyme.

 

Then I came down with CFS and the Fibro in quick succession. I was told then

 

that essentially Fibro was the " diagnosis by elimination " -- eliminate all

 

the other options (including leukemia) and Fibro is what you have left. But,

 

they've come a ways since then and I've not kept up on the latest diagnostic

 

processes. Just glad I have a way to avoid the symptoms without medications.

 

:-)

 

 

 

Tina in NC

 

 

 

 

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