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Migraines (Was: FDA's proposed $2000 fee for cosmetics manufacturers)

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At 01:20 PM 5/24/2008, you wrote:

> I'm gonna be scared of

>by the proposal of $2000, I'm taking a anti-seizure/migraine drug for

>cluster headaches which the doctor informed was " new " and which they

>do not " know " the long-term affects (they got that through the FDA

>with a little green didn't they).

 

 

totally off topic... but you mentioned migraines and cluster

headaches... I came across a GREAT book on alternative treatments for

dealing with migraine disease... wrote about it in my blog and added it to

our amazon page.. http://www.naturesgift.com/booklist.htm#migraine

 

(if this is blatant commercialization, I apologize to the mods in

advance... but the book is filled with techniques, experience,

knowledge.... I was impressed!)

 

 

 

Over 12 years online supplying Aromatherapy and Healthcare Professionals

Website: http://www.naturesgift.com

Blog: http://naturesgiftaromatherapy.blogspot.com/

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Thanks Marge, I have the oils to make them go away, but let me

explain the problem about clusters.

 

Clusters are 10x worse than a migraine. They are most frequently in

men and they are called " suicide " headaches because many people end

up committing suicide just to rid themselves of the pain. I have had

a continuous headache since April. It started out as a dull headache

on one side of my head that came on suddenly at different times of

the day. I thought it was because I was coming off Effexor, which

happened the last time I came off. But this was worse. The pain

then began radiating from my neck to behind my eye to the top of my

head, to the other side of my head to my jaw at times. I could take

Ibuprofin and it will go away. By the middle of May they were down

right excruciating and continuous. Right now the pain is dulled and

in the my upper back and neck and on the right side of my head. At

certain times like a earthquake the pain will turn into a sharp,

excruciating pain which lasts about 20-30 minutes then go back to the

dull pain. Sometimes it will be in my jaw. I've been tested for

meningitis and brain tumors. I have had energy healings from people,

drugs, essential oils and even putting ice on my head will make the

pain go away for a bit, but then it comes back.

 

There's nothing really that can be done for clusters. They put me on

Topomax which worked for a day or so, which the doctor will probably

up the dossage. I can't walk around with an icepack on my head all

day. I've learned to deal with the pain for the most part. They say

it can last a few months to ???

 

We'll see.

 

Michele

 

ATFE2 , Marge Clark <marge wrote:

>

> At 01:20 PM 5/24/2008, you wrote:

> > I'm gonna be scared of

> >by the proposal of $2000, I'm taking a anti-seizure/migraine drug

for

> >cluster headaches which the doctor informed was " new " and which

they

> >do not " know " the long-term affects (they got that through the FDA

> >with a little green didn't they).

>

>

> totally off topic... but you mentioned migraines and cluster

> headaches... I came across a GREAT book on alternative treatments

for

> dealing with migraine disease... wrote about it in my blog and

added it to

> our amazon page.. http://www.naturesgift.com/booklist.htm#migraine

>

> (if this is blatant commercialization, I apologize to the mods in

> advance... but the book is filled with techniques, experience,

> knowledge.... I was impressed!)

>

>

>

> Over 12 years online supplying Aromatherapy and Healthcare

Professionals

> Website: http://www.naturesgift.com

> Blog: http://naturesgiftaromatherapy.blogspot.com/

>

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Hey Michele,

 

I have the cluster headaches. Have had them for 5 years 24/7/365!! I

know what you are going through and nothing helped. I am on Topomax as

well at 200mg. It seems to help more so than everything else did. I

still get some headaches, but they are far and few between. I know

certain things trigger them and have learned what do and not do as the

Topomax will negate it. If you ever want to email privately, let me

know. I've been on Topomax for three years now. I've tried going on

off of it as I really don't want to be on it forever, but the headaches

are still there. I can't use Feverfew as it is a blood thinner and I

have platelete problems. I've tried Vitex and for some reason that

gives me headaches as well as Lavender! Go figure. Anyway, I'm here if

you need me.

 

Nikie Brown

After The Rayne - Handmade Soaps & Bath Products

Zozca - A Cleaner Way of Life

www.zozca.com

http://www.aftertherayne.com

nbrown

936-203-3188

 

 

 

ATFE2 [ATFE2 ] On Behalf Of

Chaeya

Saturday, May 24, 2008 7:32 PM

ATFE2

[ATFE2] Re: Migraines (Was: FDA's proposed $2000 fee for

cosmetics manufacturers)

 

 

Thanks Marge, I have the oils to make them go away, but let me

explain the problem about clusters.

 

Clusters are 10x worse than a migraine. They are most frequently in

men and they are called " suicide " headaches because many people end

up committing suicide just to rid themselves of the pain. I have had

a continuous headache since April. It started out as a dull headache

on one side of my head that came on suddenly at different times of

the day. I thought it was because I was coming off Effexor, which

happened the last time I came off. But this was worse. The pain

then began radiating from my neck to behind my eye to the top of my

head, to the other side of my head to my jaw at times. I could take

Ibuprofin and it will go away. By the middle of May they were down

right excruciating and continuous. Right now the pain is dulled and

in the my upper back and neck and on the right side of my head. At

certain times like a earthquake the pain will turn into a sharp,

excruciating pain which lasts about 20-30 minutes then go back to the

dull pain. Sometimes it will be in my jaw. I've been tested for

meningitis and brain tumors. I have had energy healings from people,

drugs, essential oils and even putting ice on my head will make the

pain go away for a bit, but then it comes back.

 

There's nothing really that can be done for clusters. They put me on

Topomax which worked for a day or so, which the doctor will probably

up the dossage. I can't walk around with an icepack on my head all

day. I've learned to deal with the pain for the most part. They say

it can last a few months to ???

 

We'll see.

 

Michele

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Speaking as a RMT with trigger point training, I can say with relative

certainty that, while beneficial for removing the TrP's in the scalenes, the

SCM and the suboccipitals that can contribute to other types of headaches,

Cluster Headaches are a different breed. At best, TrP therapy will do very

little to help and at worst, it could make matters worse by contributing to

the cluster pain.

 

What I do know about them is that around 70% of cluster suferrers respond

very well to Oxygen therapy and, with known irritants including tobacco

smoke, alcohol (a vasodilator) and high altitudes (+5000ft), there

definitely seems to be an issue with proper breathing and O2 metabolism.

 

 

--

_________________

Slán

Medb

--------O

 

~ Go dtugtar breith orainn dá réir ár ngníomhartha. ~

 

 

 

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