Long/how to get decent medical treatment

[Guest guest]

This is what I emailed to the U of W. The head of nuclear medicine.

 

I was in your nuclear medicine facility in the early 70's and saw a Dr.

Thomas Rudd. Being born in 1947 in Ohio, my father in the Air Force, had a

series of at least three to five gamma radiation treatments on my thymus

gland. Since that time I have been plagued with illness after illness, an

endocrine system that is out of balance, and vague symptoms akin to CFS. My

reaction to medications is idiopathic in most cases, that is, if I have not

become allergic to them. I've been told I am autoimmune. Most Doctors

don't want to take the time to have me as a patient. I've been told my case

is [ too complicated]. I am a 54 year old female, who is very weary of

trying to find a way to be healthy. By chance I walked into a Doctor's

office about a month ago, and had my records sent ahead. He knew what was

wrong. It was the radiation as an infant. It is my understanding in the

80's there was a study at the U on people like me. First, please know if I

never had to see a Dr. again I'd be thrilled.:-) Being misunderstood, and

misdiagnosed so many times by inexperienced Doctors, who had no idea what

was wrong with me, I'd about given up. What I was told is, that I may not

ever get a lot better, but there is management for me. I believe my PA sent

my record to the U. However, I am not a sit back and wait person. I am

reaching out to you for guidance in this matter. I have a gamut of problems

that may not be in your specialty, but I am starting at the source.

Radiation. Also it is my understanding that talking to the U of W

physicians a few years back, that the nuclear medicine people and the endo's

disagree on management. I had my parathyroid glands, three of them, removed

in 92. I don't want do go on and on about my medical history. Just looking

for starting gate. What I was told by my PA who went to the U, is I should

see a Dr. there who would most likely be a third year resident, and maybe by

the second or third visit, I'd be with a panel of doctors to try to find a

way to manage my health. If there is any way you can help me, or steer me,

I'd be most appreciative. I live in Sumner, and don't drive to Seattle

alone now. My husband has to take the day off to drive me there. I hope you

can give me some information or steer me in the correct direction.

Sincerely,

-------

Now the long and the short of it is IMO doctors are scared of me. I am not

the [ normal patient] as my body is different than most of yours. There

were 3,000 to 5,000 babies that were radiated like this in a ten year

period. The PA that I saw was involved in the study. I have a friend who

also has a son with this. I've had doctors look at my medical history and

refuse to take me as a patient. This latest guy which is a PA knew right

off the bat what was wrong with me, BUT, his dominant female Dr. IMO, has

put a treatment gag on him. Maybe scared of medical malpractice suits?? Who

knows? He has told me all along not to worry, if I can't find treatment,

he'd treat me. Well, I saw my GYN NP and she was a new one for me. She

wouldn't treat what I had wrong, and I had a follow up with the PA and I

told him that I still couldn't get treatment. His answer?? To call the

office manager of the GYN and complain. Also I took a few articles from

lists I am on that I'd printed up from new health sources for him to read.

He got all upset, told me to stay off the net and I didn't have these

things. I KNEW THAT!! I am not stupid, I took them in thinking he may be

interested.

What I am thinking of doing is writing a letter to the editor in our local

paper asking how someone gets treatment when the government allowed them to

ruin my health. I am about ready to give up. Any good ideas?

Lona

http://tahomagirl.com

Please visit my health links

 

who is NOT a hypochondriac, just had to be self taught about health and

Marcus Welby where are you?

[ any questions? ask me]

( please feel free to forward this to anyone you think may have an answer)

[Guest guest]

In a message dated 2/23/02 6:53:55 PM Pacific Standard Time, lona writes:

 

 

What I am thinking of doing is writing a letter to the editor in our local

paper asking how someone gets treatment when the government allowed them to

ruin my health. I am about ready to give up. Any good ideas?

 

 

You don't mention who was in charge of the study in the first place? The government? Perhaps you could find out and write to them?

Cheryl

[Guest guest]

Hi Lona

I surely don't have any answers for you, but, my mom had radiation

treatments as an infant too!

It was because of 3 birth marks! I think they did it 3 times to her.

She was born in 1946, in New Orleans, Louisiana.

She hasn't a huge case history of doctors, because we didn't go to them.

When she was around 30, she started learning more about herbs and went to

iridoligists (sp?).

She really hasn't been sickly, per se, but, has always had problems with

her back and sciatic nerve.

We were pondering not too long ago about the possible effects that

radiation treatment had on her and her DNA. You think it could have

mutated them or something?

One reason asking is because she had seizures as a child, her oldest dd,

Aimee did too, one of Aimee's kids had seizures, my other sister had

seizures, and my dd had seizures. The seizures did not last long... only

for a short time as each was a child or infant.

My dd hasn't been vaccinated and is still breastfed at 3 years old.

I think I'm going to print your letter out and send it to my mom and see

what she thinks about it.

 

Alison,

SaHM to acrobatic, talkative, intelligent, amazing cutie-pie, Calista,

born 2-13-99

http://alison.htmlplanet.com --->my site

http://calista.htmlplanet.com -->Calista's site

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