Would you please send healing energy to Mystic Rose (Pam)?

[Guest guest]

A lady on my WTC_Tragedy list at posted this message. My heart

just goes out to her and her family, they've suffered so much with the loss

of their pets, belongings and home in the fire plus her horrible disease.

 

If any of you could send her healing energy, I'm sure she'd appreciate it!!

 

- Anna

 

 

 

 

>Delivered-mailing list WTC_Tragedy

>Sat, 10 Nov 2001 22:18:14 -0600

>WTC_Tragedy

>[WTC_Tragedy] To All - About Me...

>

>Hi all,

>

>I decided that since I have received numerous messages since I posted that

>I had been ill today that I would just sit down and type up what is wrong

>with me. That way, if you don't see me post during the day again, you will

>know that I am just fine and dandy and I'll be back. Hum... wasn't that a

>line in a movie? Hehehe. Ok, here goes.

>

>I am 47 years old and Female in case you all couldn't tell that. Hehehe I

>live with my husband, Rick, 2 cats and 5 horses in Montana on 3

>acres. Rick and I have been together 10 years. I have no children.

>

>About 4 years ago I was diagnosed with a very, very rare incurable disease

>called, " Adiposis Dolorosa " AKA " Dercum's Disease " . This disease, broken

>down in a nutshell, is a disease in which I grow tumors all over my

>body. These tumors attach/grow upon the nerves in my body. When they

>appear they are so very tiny. As they grow they create lesions/rips on my

>nerves. Therefore I am in pain 24/7 365 days a year. When a tumor comes

>it may grow very slowly at times, at other times they can grow 10 times

>their size in the course of 24 hours. I may go for periods of time before

>getting new tumors and I go for periods of days when I get 10-20 a day. I

>can always tell when a new tumor comes because it feels like someone has

>taken a hot jagged knife and ran it through my body. Sometimes several

>come on all at the same time and that is pretty bad.

>

>I live on Tylenol and Nuprin each day. These barely take the edge off the

>pain, however it does make the pain liveable. On rare occasions I take

>pain pills when the pain is so bad that I can not stand it. I am afraid to

>take them because people become immune to them in time. There are only so

>many types out there and I do not want to run out of types to take before I

>die. If all goes well, I have about 10 years left. I would imagine

>towards the end my pain will increase. I want to make sure that I have

>something to take when it reaches that point.

>

>I have tumors on probably 70% of my body at this time. To touch them or

>put pressure on them causes excruciating pain. I have to wear clothing

>that is 3-4 times bigger than I should because the pressure of the clothing

>causes pain. The tumors are filling up inside making it hard as they put

>pressure on my bladder which makes it very hard to visit people because

>when I have to go to the bathroom I must be about 10' from it or I won't

>make it in time and even then sometimes I don't make it. The tumors have

>filled up my abdomen that I have to eat little bits of food all day long

>because there is no room for much food to go in there. The tumors are

>surrounding my lungs to the point that it is impossible to take deep

>breaths and I get dizzy frequently. I have them on the bottom of one

>foot. A couple days ago I got two on the palm of my hand. Basically, they

>are pretty much all over. It is hard to sleep because I can't lay in a

>position to where at least some of the tumors have pressure on them. They

>are around my throat and often times my food will not go down and I almost

>choke to death. Well, maybe not literally, but it sure feels that way

>until I get the food dislodged and I can breathe again.

>

>Prior to getting this at 43 years old, this woman had not been to a doctor

>for about 5 years. I never got sick. Not even a cold. I did have

>seasonal allergies, but they weren't too bad at all. Since getting this

>disease, I also have been diagnosed with Fibromyalgia, High Cholesterol,

>High Blood Pressure, Sacroiliac Dysfunction, Diabetes, Tendonitis and one

>other thing that I don't remember. I take 10 different medications a day.

>

>There is no cure. There is no treatment other than supportive

>medication. You can not remove the tumors as they are attached to the

>nerves. If you do disturb them in anyway it causes the disease to

>accelerate. Lyposuction is not an option for the same reason. There is

>one treatment for pain in which you can be placed in the hospital and get

>an IV of Lidocaine. However, if you have High Blood Pressure or High

>Cholesterol they can not do it as it could kill you. Also, there are few

>doctors that are capable or have the training to do this.

>

>I was an extremely active person when I was healthy. My husband and I were

>never home. In fact when I met my husband at age 37 he told me later that

>he almost left me because he could not keep up with me. We used to never

>be home. We camped, we hiked, we fished, worked in the yard, remodeled our

>house constantly, went and visited friends and family, went dancing, played

>pool, etc. If we didn't have something planned in our spare time we would

>just get in the car, take the cameras and start driving. We would just

>take any road we came upon with no designation. We actively did wildlife

>photography all the time. Well, he did the wildlife and I did the flowers

>and scenery. We just NEVER stopped doing things.

>

>And then this hit and that was the end of my life as I once knew it. We

>lost our home, all of our belongings, our 3 cats and almost our lives to a

>house fire on 9-29-2000. Thanks to my uncle and my grandmother who

>purchased the 9 acres here in Montana and gave us 3 acres, I was able to

>realize my dream of having horses again. I had horses my entire life until

>I got divorced in 1990 and always dreamed of being on a farm again and

>having horses. I am not able to ride them for more than about 30 minutes

>once a week because of the pain, but I can still look at them, touch them,

>be with them. We have 3 that will need to be trained, 2 yearlings and one

>5 month old and though I won't be able to do the training, I will be able

>to sit and tell my husband what to do.

>

>I am not able to stand more than 15 minutes or so thus dancing, playing

>pool, shopping, hiking, etc are out. Riding in the car is so very

>difficult for with the movement of the car my body shifts and I'm rocked

>back and forth on my tumors. I can sit at the computer because I can twist

>my body in such a way that I'm able to avoid the majority of the tumors

>except for the ones on my tail bone. But even then I can hold myself in

>such a way that there is not a lot of pressure on them. I can not spend

>much time outside because one of my medications is one that I can not be

>out in the sunlight or it will cause me harm. We have no friends anymore

>to visit even if I could because we moved here. All I have here is my

>husband, my uncle and my grandmother and my animals, of course.

>

>Prior to 9-11 I spent most of my time in bed. I would get on the computer

>from time to time. I would go outside and sit and watch my husband work

>around the place in the early mornings or the late evenings when the sun

>was not up. But 75% of my time was spent in bed. There was really not

>much I could do. I had no goals or really nothing that served a purpose to

>do.

>

>9-11 changed all that. I started sending out a couple News things to the

>groups I joined shortly after 9-11. I didn't think anyone would care at

>all. I was wrong. Immediately I started getting messages of thanks and

>appreciation. So I kept on. I posted and searched more and more. Since

>that time I have received 100's of messages of thanks from all over the

>world and from all the lists I belong to. Suddenly, I had a purpose in

>life again other than laying in bed. I had something to do each day to be

>a productive member of society so to speak. Now 70% of my life is spent

>OUT of bed and on the computer watching TV. I have people I can talk to

>and interact with. Real human beings. Not animals and my husband. But

>REAL PEOPLE OUT THERE IN THE WORLD. I look forward to getting up every

>day. I know that when I do I will download 1000 messages and there will be

>many messages in there that I can answer. I can talk to others. I can

>LIVE once again in the real world. Not in person, but at least I am

>TALKING to many, many others.

>

>Thus my new role in life has become that of " Pseudo News

>Reporter " . LOL And I am enjoying every minute of it. Not only am I

>providing things to others that appreciate it, I am also helping myself in

>the process. I am learning all I can about what is going on around me. I

>am educating myself on Anthrax and Small Pox and other things. Because of

>my learning I do not fear any of these things. For the unknown is much

>more fearful than the known. I have made sure my family is prepared in the

>way of food, candles, emergency supplies, etc in case something happens and

>we may not be able to get to the store which is 40 miles away. I feel I

>have done all I can and should something happen beyond my control, then

>it's just that, beyond my control. Other than that I've taken care of all

>I can think of and thus do not fear at all.

>

>My life is now on here, on the computer, corresponding with all of you

>people and watching the news. I wish I had a REAL LIFE like I used to, but

>unfortunately I can not. So, I make do with what I have. I love life and

>am glad I am alive. I am happier now than I have ever been in my life. I

>wish there was more to it, but I accept what I have. I have a positive

>outlook on life and trust and believe in God. When this tragedy is over

>and done with and I no longer have this to do, I have DECIDED that I will

>find something else to do. I will not resign myself to my bed any

>longer!!! I will find SOMETHING to do. 9-11 has shown me that I CAN do

>something besides spend my time in bed. I don't know what that is right

>now, but I WILL find something. I have about 10 years left and thanks

>to 9-11 and these lists and sending out my News, I realize that I don't

>have to spend those 10 years in bed. I will instead spend those 10 years

>living them to the fullest!!!!

>

>If you or anyone else has any questions about me or my life, please feel

>free to ask. I don't mind one little bit answering questions. I'm a very

>open person and feel that I have nothing to hide. I don't ordinarily just

>volunteer my story like that, but since Garry was wondering about my social

>life... Hehehe... I thought I would explain why I don't have one. LOL I do

>apologize for it getting so long though. But it was kind of hard to explain

>it all within a few short words.

>

>

>Wishing You The Very Best From " Big Sky Country " Montana, USA

>

>Mystic Rose (Pam)

>