Progressive Multifocal Leukoencephalopathy

July 22, 2005

Hello,

On April 1st (yeah that's right) I was diagnosed with PML. It is a

rare brain disease, found mostly in AIDS and MS patients.

My physician and most of the medical community (yeah I've

searched) give little hope. Most estimates are that I have 2-4yrs, and

that is on the harshist of HIV drugs.

I live in horrible state of being, there are seizures and rages,

thunderstorms and fire, nothingness and tears.

I do not wish to die so soon, it seems quite unreal. I also do not

relish living in this personal hell inside my mind.

Any help would be appreciated.

Fare Thee Well,

wayxes99

July 25, 2005

Wayne, I am not a professionsnal to give you any advice, but I am sending you lots of good wishes and hope they will help you.

Rima

PS: Yoga it seems, can help with control of the mind.

-

wayxes99

holistic-health

Thursday, July 21, 2005 5:35 PM

Progressive Multifocal Leukoencephalopathy

Hello, On April 1st (yeah that's right) I was diagnosed with PML. It is a rare brain disease, found mostly in AIDS and MS patients. My physician and most of the medical community (yeah I've searched) give little hope. Most estimates are that I have 2-4yrs, and that is on the harshist of HIV drugs. I live in horrible state of being, there are seizures and rages, thunderstorms and fire, nothingness and tears. I do not wish to die so soon, it seems quite unreal. I also do not relish living in this personal hell inside my mind. Any help would be appreciated. Fare Thee Well, wayxes99

July 25, 2005

Hello Wayxes99,

I'm sure everybody's best wishes will go with you.

I wonder if Bach flower remedies might help with your emotional turmoil?

Do you know about them?

The link below is lifted from a recent message from the Bach centre email group, which has been a great help to many,

Best wishes,

Stewart

Visit your group "talkbach" on the web.

-

wayxes99

holistic-health

21 July 2005 23:35

Progressive Multifocal Leukoencephalopathy

Hello, On April 1st (yeah that's right) I was diagnosed with PML. It is a rare brain disease, found mostly in AIDS and MS patients. My physician and most of the medical community (yeah I've searched) give little hope. Most estimates are that I have 2-4yrs, and that is on the harshist of HIV drugs. I live in horrible state of being, there are seizures and rages, thunderstorms and fire, nothingness and tears. I do not wish to die so soon, it seems quite unreal. I also do not relish living in this personal hell inside my mind. Any help would be appreciated. Fare Thee Well, wayxes99