Condition of my daughter

[Guest guest]

Hi,

 

My 9 year daughter had MRI in June 07 that showed cerebellum degeneration.

Doctors suspects for a genetic condition Ataxia Telangiectasia , a progressive

genetic disorder.

 

She has other conditions:

Slurred speech (sometimes),

poor reflexes,

red veins in her eyes

 

During August 2006 her Immunoglobulin were normal with minor deficiencies of

IGg2. However, in October 2007 her Immunoglobulin levels have declined with

lowWBC and high alpha-fetoprotein

She was born caesarean and weighed 2.6 kg, she mostly lived in Lucknow.

 

She was healthy in her first 6 months then she got very high fever and

thereafter she became fussy eater and remained underweight most of the

time with instances of pneumonia, cough and cold

In April 2002 we came to Canberra Australia, she gained lots of weight

till March 2003 when she got Atypical Pneumonia (Mycoplasma) After that

she used to had running nose and coughing most of the time In 2004 Chest

 

CT scan was done and in 2005 bronchioscopy was performed, both came normal

In 2005 grommets were put in her ears, after that she had lots of fevers

and discharge from ears. That subsided when grommets cameout by itself

 

In May 2006 we moved to Sunshine Coast, a city near Brisbane

 

In August 2006 she developed Haemophilias Influenzae infection in lungs

and was admitted to hospital where intravenous antibiotics and

physiotherapy was done. CT scan showed bronchiatasis. Now she is on

antibiotic azithromycin and we do physiotherapy for chest, she got rid of

coughing and running nose that she has since last 3 years

 

In Feb, 07 her lung function test was 52% which improved to 69% in Sept 07. From

June onward she is practising Pranayama and probably that has increased the lung

function.

 

She was tested for the AT gene, test came inconclusive in June. Again she

was tested in August but that test result is still pending (this gives us

some hope that her condition will not be that severe or she won¢t have

that)

 

By first look she appear normal girl with normal weight and height and she

is very happy girl with intelligence and good memory

 

Recently I came across a research paper on this dissease that suggest that most

of the conditions are acquired because of oxidative stress in the body resulting

from low production of SODs and probably use of antioxidants may help. Presently

I am trying to give her foods with more of antioxidants including those that can

cross BBB.

Please suggest something for her.

 

Regards

San

[Guest guest]

Though your daughters history shows cerebelium degenration, her

immune system appears weak from childhood itself. Antioxidants will

definitely help restoring this deficiency. vision, hearing and

balance of the body is taken care in a single cranial nerve, hence

all these issues are related.

 

Daily or alternate day neti with warm saline water, Nasya with a

specially prepared indian cow ghee, breathing technique to increase

CSF production and panchgavya medicines were used to make a brain

tumor (causing symptoms of speech, vision, balance, similar to what you have

mentioned) dormant for a 20 year old boy. This case has been mentioned in

archives. Unbelievable power of Panchgavya medicines is being noted

only in last 10 years and Vadyas are slowly adopting them.

 

When you come to India next, visit this author to learn the breathing

technique and neti/nasya procedure. Till that time continue using

pranayama and anti-oxidants available to you.

 

Many cases of sinusitis, frequent skin erruptions, frequent

cough/cold/fever showed wonderful results when anti-oxidants were

used.

 

 

_________________________

 

My 9 year daughter had MRI in June 07 that showed cerebellum

degeneration. Doctors suspects for a genetic condition Ataxia

Telangiectasia , a progressive genetic disorder.

 

She has other conditions:

Slurred speech (sometimes),

poor reflexes,

red veins in her eyes.

[Guest guest]

i recomend " MAGNO " the worlds greatest ANTIOXIDENT for your

daughter. " MAGNO " contains the extracts of 6 powerful anti

oxidents.MANGOSTEE JUICE,AELO VERA JUICE,GOGI BERRY

JUICE,GREEN TEA EXTRACTS,GRAPE SEED EXTRACTS,AND

NONI FRUIT.

 

I am sure your daughter's

condition will improve.

 

For further details you can refer the website

greenwayshealthcare.com, check testemonials.

Good luck.

 

ravi

chennai,india

+91-9841525298

[Guest guest]

Dear Dr Bhate,

Thanks for going through my email and providing useful suggestions.

I will see you when I will be in India.

Presently I am trying to follow a concept of Ayurved that " Food is

medicine and medicine is food " . So I am colllecting nutrient and

antioxident information about differetn foods.

Can I give my daughter Brahmi and GotuKola, both have got something

that has got something to do with Cerebellum. I was able to get dry

leafs Brahmi and Gotukola, but is it right to give that as a herbal

tea to a child?

Further would you like to suggest some more things that can be done

in terms of diets for her. I am trying to avoid any suppliments

unless prescribed by an expert.

Further, will it be alright for a 9 year old to do Jal Neti, I used

to do it while I was in India but here it is hard to get the neti-

pot but can be arranged.

Unfortunately, Panchgava medicine will certainly be hard to find

here as pure cow milk is obscure here.

Regards

San

 

When you come to India next, visit this author to learn the

breathing

technique and neti/nasya procedure.