Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 Child Development Center, Thiruvananthapuram, India MKC Nair, MD, PhDCo-Funders: Autism Speaks ($100,000/2 years), the Indian National Trust/ Ministry of Social Justice and Empowerment ($200,000/2 years) and International Clinical Epidemiology Network (INCLEN) ($201,962/2 years) Neurodevelopmental Disabilities among children in India Given current epidemiologic estimates, there are approximately 1.7 million individuals with autism in India. The primary objective of this research project is to assess the screening and diagnostic prevalence of neurodevelopmental disorders, including autism, in children between the ages of 2-9 in India and gain information on risk factors in these children. The investigators will develop a novel neurodevelopmental disability screening tool and consensus clinical criteria, and validate these instruments so that they can be used in as a diagnostic instrument for further evaluation of the prevalence of autism in this country. In addition to studying the prevalence of autism in Indian, the investigators will also identify the full clinical spectrum of autism using their test instruments. In addition to case ascertainment, potential risk factors for autism, including infections, nutritional deficiencies and genetic factors will be identified through open ended interviews with health personnel. Significance: The absence of a screening tool for developmental disability in young children from developing countries has previously hindered autism research and services in these territories. As the first nation-wide epidemiology study in India focused on autism, this project could have significant impact on national research, health and education policies. The identification of an initial nation-wide developmental disability cohort would allow more refined characterization of the Indian autistic population, setting the stage for exploring future scientific opportunities in causes (more comprehensive epidemiology and genetic studies), diagnosis (Baby Sibs), and treatment (clinical trials) in that country. By generating valid data from India, capturing socio-cultural and geographical variability, researchers can better identify the true worldwide prevalence of autism and further quantify risk factors which may contribute to these differences. "Our ideal is not the spirituality that withdraws from life but the conquest of life by the power of the spirit." - Aurobindo. Want to be your own boss? Learn how on Small Business. Quote Link to comment Share on other sites More sharing options...
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