Need EFA advice (v. long)

[Guest guest]

At 10:00 AM 11/17/2001 +1030, you wrote:

<snip>

>Can you email me what he would eat and drink over say 3 days? I will do a

>nutritional analysis for you.

 

Thanks that's very sweet of you.

Breakfast: Eggs, or french toast (using rice bread) or rice cereal with

rice milk, either an apple (pealed golden delicious) or some cantaloupe and

rice cakes (on weekends he will get a piece of his dad's bacon - I know bad

mommy)

Lunch: Rice bread with pear and cashew butter, or a hamburger patty and

carrots, or maybe chicken breast and rice and another apple/pear or

cantalope (If grandma is around he sometimes gets Chinese takeout, like

rice noodle veggy soup and ribs)

Dinner: Rice crust pizza with spaghetti sauce and ground beef (last night)

or lamb chop with rice cake and carrots, or turkey with rice and an

apple. Sometimes for dinner he wants something simple like rice cereal, or

rice cakes with cashew butter and apple, which is okay with us.

 

We had some excitement this evening. He ate a fig. I didn't bother

checking on it's phenol content, I just let him have it.

 

>The digestive problem may be helped by using free form amino acids which

>don't need digestion from dietary protein and

>will give your son a full complement of the amino acids he needs. I'm

>sure you know amino acids are the raw building

>blocks of the body and without sufficient amino acids, a lots of otherwise

>healthy systems will find it difficult to

>work properly.

 

Actually, other than L-glutamine supplements, most of the moms I know are

going the enzyme route. I'll have to do some research on this whole free

form amino acids issue.

 

 

>A lack of digestive enzymes is one effect as these enzymes are composed of

>amino acids. Sort of like a " Catch 22 " .

>Don't get enough digested amino acids from protein and you can't make

>enough digestive enzymes to break down food so you

>have a lack of amino acids.

 

In my neck of the woods, lack of digestive enzymes is associated with

mercury toxicity. It isn't seen as a *Catch 22* at all. By chelating, the

enzymes get back to work. I guess in theory just taking amino acids should

be helpful, but I'm out of my depth. Quite a few kids on the spectrum are

using L-Glutamine and sometimes Taurine supplements, and we have some

L-Glutamine in our kitchen pantry as well. My son responded well to

secretin, but it was too expensive. That sort of jump-started his whole

recovery process. But I think he would have recovered without secretin, it

just would have taken much longer.

 

 

>10. Can one become dependent upon oral enzymes? Will the pancreas stop

>functioning if I take enzyme for a long time?

>No. Pancreatic enzyme secretion is due to hormonal signals resulting from

>mechanical stretching of the stomach wall as food enters as well as from

>the act of chewing, tasting and smelling food. Research has shown some

>adaptability of the pancreas in animals; giving oral enzymes resulted in a

>slight decrease in pancreatic enzyme output that quickly returned to

>normal once enzymes were stopped.

http://www.houstonni.com/pages/enzyme_faq.html#Anchor-faq6

 

>The following is from " Nourishing Your Child - A Bioecologic Approach " by Dr.

>Ray Wunderlich, M.D. "

 

> " More specifically, when too much stress causes the pancreas to function

>improperly, there is first a reduction in the proper levels of pancreatic

>bicarbonate. Bicarbonate is the pancreatic secretion that creates a

>necessary alkaline medium for the small intestine. Pancreatic digestive

>enzymes function best in an alkaline medium. The reduction of the proper

>bicarbonate levels sets off a chain reaction in

>which the pancreatic enzymes are destroyed. Low production of pancreatic

>proteolytic enzymes in turn results in multiple amino acid deficiencies

>caused by a lack of proper digestion of proteins to amino acids. Any amino

>acid deficiency is a very serious biochemical problem, because the central

>nervous system, as well as many other biochemical systems within the body,

>malfunctions when amino acids are in short supply. In fact, if there is a

>single amino acid deficiency or a group of

>deficiencies, you can be assured that some form of serious degenerative

>disease will soon follow " .

enzymesandautism/message/8679

 

I got this off of the Enzymes and Autism archive. So the lack of amino

acids is being discussed, but other than L-Glutamine and Taurine

supplements, it seems that we are all going the enzyme route, (and many are

also chelating).

 

 

 

>I see getting your son a full complement of amino acids as a good starting

>place. No sense fighting a body which is low

>in amino acids.............

 

I'll have to do some research and ask on the boards why this isn't being

done more often. Kirkman Labs. which specializes in autism does offer

this Amino-Support:

>But there is another aspect to maldigestion and leaky gut. While unwanted

>peptides get into the body, needed free-form ammo acids from dietary

>protein may be in short supply. To investigate this, clinicians have

>performed amino acid analysis on blood and urine from autistics. Jon

>Pangborn (the author of this section of the Kirkman catalog) surveyed over

>60 such analyses from various medical practices. In doing so, notable

>similarities were found in the laboratory-measured patterns of amino acids

>for autistic children, aged 3 years-9 years. About 55% showed overt signs

>of protein maldigestion, low levels of some nutritionally essential aminos

>and, concurrently, elevated levels of some small peptides that were

>measured in the same test. Sixty-two percent (39 of 63) showed need for

>taurine, a very biologically active amino acid. Fifty four percent were

>frankly deficient in the essential amino acid lysine.

>The Kirkman amino acid product " AMINO-SUPPORT " evolved from this study.

>Its contents are a weighted average of the needs as shown by statistics

>from the survey of autistic children and from human needs for amino acids

>as published by the US National Research Council (Recommended Dietary

>Allowances, 10th ed, National Academy Press, 1989).

 

>Each 4 grams (One teaspoon) supplies:

>L- Leucine300 mg.

>L- Phenylalanine 190 mg.

>L- Valine260 mg.

>L- Asparagine 90 mg.

>L- Arginine110 mg.

>L- Isoleucine 240 mg.

>L- Lysine350 mg.

>Alpha-ketoglutaric acid 450 mg.

>L- Methionine310 mg.

>L- Threonine 270 mg.

>L- Taurine380 mg.

>L- Tyrosine 90 mg.

>5-Hydroxy tryptophane 50 mg.

>L- Glutamine290 mg.

http://www.kirkmanlabs.com/products/specifications/aminoplex/Amino-Support.htm

 

 

>Here is a like for a good company which supplies a complete amino acid mix

>based on " Free Amino acids " . This could help

>your soon to reboot his systems. I use their free form amino acids myself.

>

>These aminos can go directly into the blood and are ready to be the

>building blocks of your sons body.

>

>Free Form Amino Acids

><http://www.jomarlabs.com/20blend.asp>http://www.jomarlabs.com/20blend.asp

 

I'll be glad to compare it to Kirkmans. I tend to trust them because the

needs of children on the autistic spectrum are very different from

neurotypical children.

 

 

>I would suggest mixing 1/2 teaspoon of the aminos in water three times a

>day. Have you tried STEVIA to " Sweeten "

>drinks?

 

Yes, I have it in my kitchen pantry and use it as needed.

 

<snip>

 

 

>How much does you son weight?

 

About 45 lbs and he's 42 " tall.

 

> What is his muscle development like?

 

He's always been strong. But recently his allergies bother him so much

when we go outside that he gets very little fresh air and exercise. It may

be leaf mold, or it may be the fact that we are only two miles away from

the World Trade Center which is still burning last I heard. But since

September you have to pry him out of the house with a crow bar, or a good

bribe. Thank goodness today he actually wanted to go ride his

bike! Definitely a good day. Maybe because of some new supplements I

added today.

 

 

>What medication & supplements is he using?

 

Kirkman's Daily vitamins, Total Mins Iron Free multi mineral complex with

Boron by Country Life, Flax Oil, Evening Primrose Oil, two kinds of

probiotic, Houston Enzymes, and just today we got him to take some Aloe

Vera juice and some Yummi Bears Fiber supplement for kids. Also, he

receives Epson Salt baths.

 

He's had a fecal blockage for two weeks now and no bms for about 5 days so

we added the fiber bears and aloe vera. It resulted in two movements, both

diarrhea. So the bowel blockage is still there, but at least something is

coming out of him and he was actually happy to go to the park for a

change. Sorry for the graphic details, but I do worry about cannonball

fecal impactions which kids with my son's condition tend to get.

 

Well, it's late. I hope you got my faxes which I sent today. Also, does

anyone think I should go off-list with this thread, or it is useful to folks?

 

All the best,

 

Avril

[Guest guest]

-

" Avril Dannenbaum " <lorned

 

Saturday, November 17, 2001 5:32 PM

Re: Need EFA advice (v. long)

 

 

> At 10:00 AM 11/17/2001 +1030, you wrote:

> <snip>

> >Can you email me what he would eat and drink over say 3 days? I will do a

> >nutritional analysis for you.

>

> Thanks that's very sweet of you.

 

Not a lot of effort compared to that you are putting in.

 

> Breakfast: Eggs, or french toast (using rice bread) or rice cereal with

> rice milk, either an apple (pealed golden delicious) or some cantaloupe and

> rice cakes (on weekends he will get a piece of his dad's bacon - I know bad

> mommy)

 

How many eggs per week? A little bacon is OK and I'm sure he likes it!

 

> Lunch: Rice bread with pear and cashew butter, or a hamburger patty and

> carrots, or maybe chicken breast and rice and another apple/pear or

> cantalope (If grandma is around he sometimes gets Chinese takeout, like

> rice noodle veggy soup and ribs)

 

Is there some reason you use cashew butter? Do you have it ground fresh? How

much does your son get a week? You are

aware it is 8 % Omega 6 LA.

 

> Dinner: Rice crust pizza with spaghetti sauce and ground beef (last night)

> or lamb chop with rice cake and carrots, or turkey with rice and an

> apple. Sometimes for dinner he wants something simple like rice cereal, or

> rice cakes with cashew butter and apple, which is okay with us.

 

Thanks. I'll plug in the foods and see what I get. I'm pleased to see he is

getting a good variety.

 

> Actually, other than L-glutamine supplements, most of the moms I know are

> going the enzyme route. I'll have to do some research on this whole free

> form amino acids issue.

 

Sure. Glutamine is a old work horse for leaky gut. It was in my back wings.

 

> In my neck of the woods, lack of digestive enzymes is associated with

> mercury toxicity. It isn't seen as a *Catch 22* at all. By chelating, the

> enzymes get back to work. I guess in theory just taking amino acids should

> be helpful, but I'm out of my depth. Quite a few kids on the spectrum are

> using L-Glutamine and sometimes Taurine supplements, and we have some

> L-Glutamine in our kitchen pantry as well. My son responded well to

> secretin, but it was too expensive. That sort of jump-started his whole

> recovery process. But I think he would have recovered without secretin, it

> just would have taken much longer.

 

I would suggest trying the free form aminos for a few weeks. If there is a

deficiency, you should see the effect.

 

> I'll have to do some research and ask on the boards why this isn't being

> done more often. Kirkman Labs. which specializes in autism does offer

> this Amino-Support:

 

Looks OK and it you feel happy with them then skip JoMar.

 

> >What medication & supplements is he using?

>

> Kirkman's Daily vitamins, Total Mins Iron Free multi mineral complex with

> Boron by Country Life, Flax Oil, Evening Primrose Oil, two kinds of

> probiotic, Houston Enzymes, and just today we got him to take some Aloe

> Vera juice and some Yummi Bears Fiber supplement for kids. Also, he

> receives Epson Salt baths.

 

Suggest you mix the flax & EPO with 2 standard Omega 3 capsules (they should not

have a strong fishy taste). I suspect

your son is getting very little EPA and DHA with the flax oil. While the flax

oil may generate a little EPA & DHA, you

will never get a significant amount via LNA conversion.

 

How do you get the flax oil and EPO in?

 

How much flax oil and EPO do you use?

 

I will input this data into KIM and have a look at your son's Omega intakes as

well.

 

> He's had a fecal blockage for two weeks now and no bms for about 5 days so

> we added the fiber bears and aloe vera. It resulted in two movements, both

> diarrhea. So the bowel blockage is still there, but at least something is

> coming out of him and he was actually happy to go to the park for a

> change. Sorry for the graphic details, but I do worry about cannonball

> fecal impactions which kids with my son's condition tend to get.

 

I suggest using ground flax instead of flax oil as the fibre will help. Flax

fibre is one of the best. It tastes a

little nutty and can be mixed with most foods.

 

> Well, it's late. I hope you got my faxes which I sent today. Also, does

> anyone think I should go off-list with this thread, or it is useful to folks?

 

I got the faxes. Thanks. Gosh, not a lot of EPA / DHA and heaps of AA. I'm

sure you know this is not good.

 

All my best as well for a hard working mum, :-))

Greg

[Guest guest]

At 06:19 PM 11/17/2001 +1030, you wrote:

 

<snip>

 

 

>How many eggs per week? A little bacon is OK and I'm sure he likes it!

 

Depends on the week. Some weeks he asks for omelets and french toast and

scrambled eggs, so it's somewhere between zero eggs, (last week) and weeks

where he eats at least 3.

 

 

> > Lunch: Rice bread with pear and cashew butter, or a hamburger patty and

> > carrots, or maybe chicken breast and rice and another apple/pear or

> > cantalope (If grandma is around he sometimes gets Chinese takeout, like

> > rice noodle veggy soup and ribs)

>

>Is there some reason you use cashew butter? Do you have it ground

>fresh? How much does your son get a week? You are

>aware it is 8 % Omega 6 LA.

 

I'm using cashew butter as a substitute for peanut butter because it's

generally less problematic as an allergenic food. I may re-introduce

peanuts and see if he has any reaction. But he'd been having so much

peanut butter that I was worried and decided to give him a break from it.

 

><snip>

>

>I would suggest trying the free form aminos for a few weeks. If there is

>a deficiency, you should see the effect.

 

I'll probably buy the amino acids when I place my next order with Kirkman labs.

<snip>

>How do you get the flax oil and EPO in?

 

I mix it in with his food. He doesn't mind the taste at all.

 

 

>How much flax oil and EPO do you use?

 

One cap of Organic Flax 1,000 and 3 caps of Evening Primrose Oil per day,

they are both Health from the Sun brand. (This was what our DAN protocol

doc originally suggested.)

<snip>

 

>I suggest using ground flax instead of flax oil as the fibre will

>help. Flax fibre is one of the best. It tastes a

>little nutty and can be mixed with most foods.

 

Thanks, I'll look into buying a grinder.

 

 

> > Well, it's late. I hope you got my faxes which I sent today. Also, does

> > anyone think I should go off-list with this thread, or it is useful to

> folks?

>

>I got the faxes. Thanks. Gosh, not a lot of EPA / DHA and heaps of

>AA. I'm sure you know this is not good.

 

Yes, but that was when he was not receiving any supplements at all. He was

a very sick little boy back then. I wish you could see him now. He's my

constant pride and joy.

 

Thanks again,

 

Avril, mom to Gerry (2/19/97)

[Guest guest]

Gettingwell, Avril Dannenbaum <lorned@n...> wrote:

> At 06:19 PM 11/17/2001 +1030, you wrote:

>

 

> I'll probably buy the amino acids when I place my next order with

Kirkman labs.

> <snip>

> >How do you get the flax oil and EPO in?

>

> I mix it in with his food. He doesn't mind the taste at all.

 

 

Dear Avril,

 

I buy MRM brand, 100% whey protein with digestive enzymes included. I

get it in vanilla flavor.

 

The price is $29.00 for 5 pounds weight.

 

It seems to be a very good product and is available at most health.

food stores.

 

Frank

[Guest guest]

At 11:02 PM 11/17/2001 +0000, you wrote:

 

Hi Frank,

 

Could you tell me if the whey protein also has casein? We avoid all dairy

products right now because of his inability to process dairy proteins, it

triggers his autism.

 

Thank you,

 

Avril, mom to Gerry (2/19/97)

 

 

>Dear Avril,

>

>I buy MRM brand, 100% whey protein with digestive enzymes included. I

>get it in vanilla flavor.

>

>The price is $29.00 for 5 pounds weight.

>

>It seems to be a very good product and is available at most health.

>food stores.

>

>Frank

>

>

>

[Guest guest]

Dear Avril,

 

I don't know but I would imagine it does as it is undenatured whey

protein.

 

Are you 100% sure that it is the casein or some other element in

dairy?

 

The reason that I ask is that a lot of people have trouble with dairy

but usually do not have trouble in other forms like cultured or whey

from cultured products etc.

good luck,

 

Frank

 

 

 

 

Gettingwell, Avril Dannenbaum <lorned@n...> wrote:

> At 11:02 PM 11/17/2001 +0000, you wrote:

>

> Hi Frank,

>

> Could you tell me if the whey protein also has casein? We avoid all

dairy

> products right now because of his inability to process dairy

proteins, it

> triggers his autism.

>

> Thank you,

>

> Avril, mom to Gerry (2/19/97)

>

>

> >Dear Avril,

> >

> >I buy MRM brand, 100% whey protein with digestive enzymes included.

I

> >get it in vanilla flavor.

> >

> >The price is $29.00 for 5 pounds weight.

> >

> >It seems to be a very good product and is available at most health.

> >food stores.

> >

> >Frank

> >

> >

> >

[Guest guest]

At 04:45 AM 11/18/2001 +0000, you wrote:

>Dear Avril,

>

>I don't know but I would imagine it does as it is undenatured whey

>protein.

>

>Are you 100% sure that it is the casein or some other element in

>dairy?

>

>The reason that I ask is that a lot of people have trouble with dairy

>but usually do not have trouble in other forms like cultured or whey

>from cultured products etc.

>good luck,

>

>Frank

 

Actually, I am fairly sure of it. He has leaky gut induced autism. It

means that until his gut heals any casein, gluten or soy will do more

damage than good and will cause regression until the neurotoxins have a

chance to clear his system. We had a dietary infraction over the summer

and it was not good. Some people on gf/cf/sf diets are able to tolerate

these proteins by using an enzyme supplement. But because my son's bowels

are in such a bad state right now, I'm not going to risk it.

 

For a better understanding of allergy induced autism, please go to:

http://www.gfcfdiet.com/Explanationofdiet.htm

 

Our son was tested and showed high levels of caseomorphine in his urine,

but more than the test results was the beauty of his recovery from his

autistic symptoms by strict adherance to the diet which proved to us the

importance of this diet.

 

I am quite sure in some future time we will be able to reintroduce dairy,

but now isn't the time.

 

Thanks again Frank! Your consideration is appreciated.

 

Avril, mom to Gerry (2/19/97)

[Guest guest]

--- Avril Dannenbaum <lorned wrote:

He has leaky gut

> induced autism.

 

Have you heard of the Specific Carbohydrate Diet?

There are specific carbohydrates which are trouble

makers in the digestive system, especially to those

people suffering from Crohn's Disease, Ulcerative

Colitis, IBS and Celiac, etc. The purpose of the SCD

is to eliminate these carbohydrates and cause a

healthy, natural, controlled remission. Some of most

dramatic and fastest recoveries have occurred in young

children with autistic-type hypoactivity as well as

hyperactivity. Check out their web site:

www.scdiet.org

 

 

 

 

 

Find the one for you at Personals

http://personals.

[Guest guest]

At 10:16 AM 11/18/2001 -0800, you wrote:

>--- Avril Dannenbaum <lorned wrote:

>He has leaky gut

> > induced autism.

>

>Have you heard of the Specific Carbohydrate Diet?

>There are specific carbohydrates which are trouble

>makers in the digestive system, especially to those

>people suffering from Crohn's Disease, Ulcerative

>Colitis, IBS and Celiac, etc. The purpose of the SCD

>is to eliminate these carbohydrates and cause a

>healthy, natural, controlled remission. Some of most

>dramatic and fastest recoveries have occurred in young

>children with autistic-type hypoactivity as well as

>hyperactivity. Check out their web site:

>www.scdiet.org

 

Hi,

 

Yes, I'm very aware of it. I read Gottshall's book a few months back and

have given it a lot of thought. Unfortunately, my husband has nixed the

idea based on my son being on such a limited diet already. He asks me what

would Gerry do without his rice bread and rice cakes and rice cereal. I

wouldn't even be able to make him his special rice-based gingerbread for

the holidays. Plus the sc diet, if I am not mistaken, reintroduces diary

in the form of home made kefir. This is something that we do not dare to

do because our son's inability to digest casein. In theory, with enzymes

we could try to re-introduce dairy in the form of kefir, but I'd wait until

his gut has done more healing before potentially damaging it again. Still

it is a worthy idea, and I may wait a bit and bring it up to my husband again.

 

My son only goes hyper if we have a dietary infraction such as a high

phenol food or if we introduce L-Glutamine. I added this amino acid to his

diet yesterday and he is still bouncing off the ceiling today and my

husband is ready to kill me for doing this to our son.

 

Thanks for the help anyway,

 

Avril, mom to Gerry (2/19/97)

 

Avril, mom to Gerry (2/19/97)

[Guest guest]

--- Avril Dannenbaum <lorned wrote:

He asks me what

> would Gerry do without his rice bread and rice cakes

> and rice cereal. I

> wouldn't even be able to make him his special

> rice-based gingerbread for

> the holidays.

 

But, if eliminating the rice would help heal your son,

wouldn't it be worth it?

 

Plus the sc diet, if I am not

> mistaken, reintroduces diary

> in the form of home made kefir. This is something

> that we do not dare to

> do because our son's inability to digest casein.

 

It is a homemade yogurt that requires strict adherence

to the making instructions including fermentation

timing so that virtually none of its lactose remains.

If a food specified in the diet is known to cause an

anaphylactic reaction, it is eliminated permanently

from the diet.

 

Pam

 

 

 

 

 

Find the one for you at Personals

http://personals.

[Guest guest]

Sorry, must have missed this. Why does he have to give up rice?

 

Tracy

-

" Pamela Southall " <southallp

 

Monday, 19 November 2001 12:07

Re: Re: Need EFA advice (v. long)

 

 

> --- Avril Dannenbaum <lorned wrote:

> He asks me what

> > would Gerry do without his rice bread and rice cakes

> > and rice cereal. I

> > wouldn't even be able to make him his special

> > rice-based gingerbread for

> > the holidays.

>

> But, if eliminating the rice would help heal your son,

> wouldn't it be worth it?

>

> Plus the sc diet, if I am not

> > mistaken, reintroduces diary

> > in the form of home made kefir. This is something

> > that we do not dare to

> > do because our son's inability to digest casein.

>

> It is a homemade yogurt that requires strict adherence

> to the making instructions including fermentation

> timing so that virtually none of its lactose remains.

> If a food specified in the diet is known to cause an

> anaphylactic reaction, it is eliminated permanently

> from the diet.

>

> Pam

>

>

>

>

>

> Find the one for you at Personals

> http://personals.

>

>

> Getting well is done one step at a time, day by day, building health

> and well being.

>

> To learn more about the Gettingwell group,

> Subscription and list archives are at:

> Gettingwell

>

>

[Guest guest]

At 12:53 PM 11/19/2001 +1300, you wrote:

>Sorry, must have missed this. Why does he have to give up rice?

>

>Tracy

 

The SC diet was suggested to us as a possible way to help heal his

gut. But if Gerry were to go on the SC diet, he would be without any

grains at all. At the moment, the only grain that he gets to eat is rice

because it is gluten free and he likes to eat it. Now I know there are a

few gluten free grains besides rice, i.e., buckwheat, but as much as I love

to eat kasha, Gerry's not too found of it. I haven't found a rice

substitute yet, but eating so much rice all the time does worry me.

 

All the best,

 

Avril, mom to Gerry (2/19/97)

[Guest guest]

I was told that rice has a high glycemic index, but it is one of the few

grains that does not bother me. I eat it till the cows come home! The

thing with grains is that they are converted to sugar, and stored as fat, so

not good for my problem - candida....have you considered that as well? I

read this study ages back that said a lot of kids with autism have problems

with candida. Candida causes leaky gut syndrome. Hey, you may have already

gone here, but I thought to mention it anyway.

 

Keep me posted as to what you do.

 

Good luck

 

Tracy

-

" Avril Dannenbaum " <lorned

 

Monday, 19 November 2001 14:32

Re: Re: Need EFA advice (v. long)

 

 

> At 12:53 PM 11/19/2001 +1300, you wrote:

> >Sorry, must have missed this. Why does he have to give up rice?

> >

> >Tracy

>

> The SC diet was suggested to us as a possible way to help heal his

> gut. But if Gerry were to go on the SC diet, he would be without any

> grains at all. At the moment, the only grain that he gets to eat is rice

> because it is gluten free and he likes to eat it. Now I know there are a

> few gluten free grains besides rice, i.e., buckwheat, but as much as I

love

> to eat kasha, Gerry's not too found of it. I haven't found a rice

> substitute yet, but eating so much rice all the time does worry me.

>

> All the best,

>

> Avril, mom to Gerry (2/19/97)

>

>

>

> Getting well is done one step at a time, day by day, building health

> and well being.

>

> To learn more about the Gettingwell group,

> Subscription and list archives are at:

> Gettingwell

>

>

[Guest guest]

I read recently that browning rice beforehand lowers the

glyccemic index considerably. Has anyone else heard of

this, or have any experience of this? ken

 

 

>I was told that rice has a high glycemic index, but it is

one of the few

>grains that does not bother me. I eat it till the cows

come home! The

>thing with grains is that they are converted to sugar, and

stored as >>Tracy

 

>>> The SC diet was suggested to us as a possible way to

help heal his

>> gut. But if Gerry were to go on the SC diet, he would be

without any

>> grains at all. At the moment, the only grain that he

gets to eat is rice

>> because it is gluten free and he likes to eat it. Now I

know there

[Guest guest]

At 10:29 PM 11/19/2001 +1300, you wrote:

>I was told that rice has a high glycemic index, but it is one of the few

>grains that does not bother me. I eat it till the cows come home! The

>thing with grains is that they are converted to sugar, and stored as fat, so

>not good for my problem - candida....have you considered that as well? I

>read this study ages back that said a lot of kids with autism have problems

>with candida. Candida causes leaky gut syndrome. Hey, you may have already

>gone here, but I thought to mention it anyway.

>

>Keep me posted as to what you do.

>

>Good luck

>

>Tracy

 

Hi Tracy,

 

Yes, I'm familiar with the glycemic index. I've used Protein Power to lose

weight. But we cannot substitute rice with soy because he reacts to

it. At the moment, Gerry eats only meat, rice, carrots, apples, pears and

cantaloupe. Would you feel comfortable with his only eating meat, carrots

and 3 types of fruits? Should we remove the fruits as well, leaving him

with just meat and carrots? But then again carrots are also high

sugar. You can see we are standing on a very slippery slope.

 

Candida, itself, may be a problem. More likely though the Candida is not

causing the problem but is a result of the mercury in his system which has

short-circuited his ability to produce digestive enzymes and for his bowels

to function normally. Also, I can't be sure Candida is actually what has

colonized his gut. There may be an overgrowth of Klebsiella or

Clostridium, involved. Gerry is vaccine damaged, meaning this is a

different situation from the run of the mill Candida overgrowth which most

of us have dealt with. He was on Nystatin for almost a year when it

stopped working. IMHO, Gerry really needs to take a urinary microbial test

from Great Plains Lab to know exactly what we are dealing

with. Unfortunately our current doctor is not interested in testing. You

can probably tell that I'm very frustrated by the situation. And perhaps

it can only be resolved with chelation.

 

My son is already on a low/no sugar diet already, but with a child on such

a limited diet, removing rice is very problematic. His father has already

said no.

 

Thanks for your kind thoughts and suggestions,

 

All the best,

 

Avril

[Guest guest]

Avril Dannenbaum wrote:

 

> Now I know there are a

> few gluten free grains besides rice, i.e., buckwheat, but as much as I love

> to eat kasha, Gerry's not too found of it. I haven't found a rice

> substitute yet, but eating so much rice all the time does worry me.

 

Hmm....quinoa? Is that gluten-free?

 

--

Mindy, who's never had quionoa, but giving free advice anyhow! *snort*

-----------------------

" ...that they may be one... "

- Jesus, John 17:22

[Guest guest]

At 08:16 AM 11/19/2001 -0600, you wrote:

>Avril Dannenbaum wrote:

>

> > Now I know there are a

> > few gluten free grains besides rice, i.e., buckwheat, but as much as I love

> > to eat kasha, Gerry's not too found of it. I haven't found a rice

> > substitute yet, but eating so much rice all the time does worry me.

>

>Hmm....quinoa? Is that gluten-free?

>

>--

>Mindy, who's never had quionoa, but giving free advice anyhow! *snort*

 

Hi Mindy, The okay grain/flour list includes quinoa, amaranth, millet,

yams, potatoes, tapioca, lentils, beans, Sorghum (Jowar), Teff and

Rice. It also includes soy and corn, but Gerry can't eat these. I do have

cookbooks that includes gf/cf recipes, but experimenting with all these

exotic flours is a bit overwhelming. I prefer to use rice flour, and buy

rice cakes and rice bread since I then don't have to make bread from

scratch. At the moment I have to cook three different dinners every

night. A lot of times, I will try something new, like lentil pasta, only

to have Gerry turn up his nose at it. I do try to expand his diet. But

rice has been a blessed staple for us.

 

All the best,

[Guest guest]

At 06:02 AM 11/19/2001 -0600, you wrote:

>I read recently that browning rice beforehand lowers the

>glyccemic index considerably. Has anyone else heard of

>this, or have any experience of this? ken

 

Actually, I will investigate this, Ken. I have seen brown rice cakes,

brown rice flour and brown rice bread at the hfs.

 

Many thanks to you and Tracy,

 

Avril, mom to Gerry (2/19/97)

[Guest guest]

Then I think you are wise not to do it. He will end up will deficiencies

from a lack of variety. Can he take supplements? What about veggie juices -

could you add celery, cucumber or spinach to his carrot juice. Can he eat

courgettes or ANY other veggies?

 

Trying to help

 

Tracy

 

-

" Avril Dannenbaum " <lorned

 

Tuesday, 20 November 2001 02:28

Re: Re: Need EFA advice (v. long)

 

 

> At 10:29 PM 11/19/2001 +1300, you wrote:

> >I was told that rice has a high glycemic index, but it is one of the few

> >grains that does not bother me. I eat it till the cows come home! The

> >thing with grains is that they are converted to sugar, and stored as fat,

so

> >not good for my problem - candida....have you considered that as well? I

> >read this study ages back that said a lot of kids with autism have

problems

> >with candida. Candida causes leaky gut syndrome. Hey, you may have

already

> >gone here, but I thought to mention it anyway.

> >

> >Keep me posted as to what you do.

> >

> >Good luck

> >

> >Tracy

>

> Hi Tracy,

>

> Yes, I'm familiar with the glycemic index. I've used Protein Power to

lose

> weight. But we cannot substitute rice with soy because he reacts to

> it. At the moment, Gerry eats only meat, rice, carrots, apples, pears and

> cantaloupe. Would you feel comfortable with his only eating meat, carrots

> and 3 types of fruits? Should we remove the fruits as well, leaving him

> with just meat and carrots? But then again carrots are also high

> sugar. You can see we are standing on a very slippery slope.

>

> Candida, itself, may be a problem. More likely though the Candida is not

> causing the problem but is a result of the mercury in his system which has

> short-circuited his ability to produce digestive enzymes and for his

bowels

> to function normally. Also, I can't be sure Candida is actually what has

> colonized his gut. There may be an overgrowth of Klebsiella or

> Clostridium, involved. Gerry is vaccine damaged, meaning this is a

> different situation from the run of the mill Candida overgrowth which most

> of us have dealt with. He was on Nystatin for almost a year when it

> stopped working. IMHO, Gerry really needs to take a urinary microbial

test

> from Great Plains Lab to know exactly what we are dealing

> with. Unfortunately our current doctor is not interested in testing. You

> can probably tell that I'm very frustrated by the situation. And perhaps

> it can only be resolved with chelation.

>

> My son is already on a low/no sugar diet already, but with a child on such

> a limited diet, removing rice is very problematic. His father has already

> said no.

>

> Thanks for your kind thoughts and suggestions,

>

> All the best,

>

> Avril

>

>

>

> Getting well is done one step at a time, day by day, building health

> and well being.

>

> To learn more about the Gettingwell group,

> Subscription and list archives are at:

> Gettingwell

>

>

[Guest guest]

-

" Kenneth Allen " <philoska

 

Monday, November 19, 2001 10:32 PM

Re: Re: Need EFA advice (v. long)

 

 

> I read recently that browning rice beforehand lowers the

> glyccemic index considerably. Has anyone else heard of

> this, or have any experience of this? ken

 

Hi Kenneth,

 

Browning anything creates AGE cross links between glucose and protein. These

crosslinked protein/glucose structures are

not the healthiest thing you can eat.

 

I suggest you go for natural long grain brown rice as it has the lowest GI of

the rices.

 

And try to limit frying. Not only does it creates the AGE cross links but it

turns good double bond fatty acids (mono &

poly) bad.

 

The Asians with their Wok cooking got it very right.

 

Greg

[Guest guest]

At 11:47 AM 11/20/2001 +1300, you wrote:

>Then I think you are wise not to do it. He will end up will deficiencies

>from a lack of variety. Can he take supplements? What about veggie juices -

>could you add celery, cucumber or spinach to his carrot juice. Can he eat

>courgettes or ANY other veggies?

>

>Trying to help

>

>Tracy

 

Thanks Tracy,

 

While I appreciate your help, I'll be going no-mail now. I've already

explained the supplements Gerry is taking in an early post, and the high

volume of this list is getting me down.

 

Thanks again for your help,

 

Avril, mom to Gerry, (2/19/97)