Need EFA advice

[Guest guest]

-

" Avril Dannenbaum " <lorned

 

Friday, November 16, 2001 3:09 AM

Need EFA advice

 

 

My son refuses to take Cod Liver Oil. Our pediatrician recommended this

product.

 

It seems too high in Omega 6s. Isn't the right balance 2:1 of Omega 3 to

Omega 6?

 

Comments anyone? I'd really like to try it except for this concern.

 

Hi Avril,

 

The idea to balance Omega oils is not sound. What you need to balance is daily

TOTAL Omega 6 & 3 intake. Normally the

Omega 6 linoleic acid (LA) in the oils is NOT needed.

 

You will get sufficient Omega 6 LA from spinach, broccoli, cauliflower, most

green leafy veggies & nuts. Most nuts are

very rich in Omega 6 LA. Some too rich. Walnuts are a good Omega 3 LNA source.

 

While Omega 3 LNA (from flax) can convert into the active form (EPA & DHA) the

conversion is slow and inefficient. Some

studies have shown the average conversion to be around 2 - 3 %.

 

Direct dietary Omega 3 EPA & DHA is a much better pathway.

 

Have you tried Cod Liver oil capsules? You should also be able to get enteric

coated ones which don't dissolve until

they get into the intestines and thus no fishy after taste.

 

Greg

[Guest guest]

Hi Greg

 

What can you tell me about Myristoleic acid 14:1 w5

or Cetyl Myristoleate also another combination Collastin.

How important are they? Are they a key immune modulator?

 

Rick

[Guest guest]

<< My son refuses to take Cod Liver Oil.>>

 

Try Carlson's lemon-flavored cod liver oil or salmon oil capsules from wild,

deep ocean salmon sources.

 

Rob

[Guest guest]

At 06:13 PM 11/15/2001 -0500, you wrote:

><< My son refuses to take Cod Liver Oil.>>

>

>Try Carlson's lemon-flavored cod liver oil or salmon oil capsules from wild,

>deep ocean salmon sources.

>

>Rob

 

Thanks for the suggestions but I've got 3 different bottles of CLO in my

fridge. I don't have the money to keep trying. Plus he is unable to

swallow capsules or pills.

 

All the best,

 

Avril

[Guest guest]

At 08:57 AM 11/16/2001 +1030, you wrote:

>-

> " Avril Dannenbaum " <lorned

>

>Friday, November 16, 2001 3:09 AM

> Need EFA advice

>

>

>My son refuses to take Cod Liver Oil. Our pediatrician recommended this

>product.

>

>It seems too high in Omega 6s. Isn't the right balance 2:1 of Omega 3 to

>Omega 6?

>

>Comments anyone? I'd really like to try it except for this concern.

>

>Hi Avril,

>

>The idea to balance Omega oils is not sound. What you need to balance is

>daily TOTAL Omega 6 & 3 intake. Normally the

>Omega 6 linoleic acid (LA) in the oils is NOT needed.

>

>You will get sufficient Omega 6 LA from spinach, broccoli, cauliflower,

>most green leafy veggies & nuts. Most nuts are

>very rich in Omega 6 LA. Some too rich. Walnuts are a good Omega 3 LNA

>source.

 

Sorry, forgive me. I didn't make myself clear. My son does not eat

spinach, broccoli, cauliflower or any green leafy veggies. He has on

occasion eaten a few peas, (read one or two) and carrots. That's it for

veggies. He is willing to eat apples, bananas and cantalopes, that's

totally it for the fruit department. The only grain he eats is rice. He

gets to drink rice milk or water, no juice because the concentrated sugar

can make his gut problems worse. So we are talking an incredibly limited

diet between what will not set off his autism symptoms and what he is

willing to eat.

 

I give him cashew and pear butter sandwiches on rice bread because I can

hide all of his supplements in it.

 

 

>While Omega 3 LNA (from flax) can convert into the active form (EPA & DHA)

>the conversion is slow and inefficient. Some

>studies have shown the average conversion to be around 2 - 3 %.

>

>Direct dietary Omega 3 EPA & DHA is a much better pathway.

>

>Have you tried Cod Liver oil capsules?

 

He is unable to swallow capsules.

 

>You should also be able to get enteric coated ones which don't dissolve until

>they get into the intestines and thus no fishy after taste.

 

Well, I guess the answer to my question is that the Childlife EFAs is

probably the best thing to take, all things considered. Forgive me if I

sound like a nay-sayer, it's just we have been down this road many

times. My son is recovering from autism. Him and kids like him are

extremely limited in diet. The fact is that he is unable to eat gluten,

casein, corn and soy, and needs to stay low phenols, meaning quite a few of

the veggies, even if he would eat them would set him off. In addition, he

needs enzyme supplements to even be able to digest his food.

 

I'm sorry. I'm used to the autism lists where all the parents understand

the dietary problems, I don't think I made myself clear enough when I asked

the question.

 

Thank you again Greg. I do appreciate the time you have taken with me.

 

All the best,

 

Avril, mom to Gerry (2/19/97)

[Guest guest]

-

" Avril Dannenbaum " <lorned

 

Friday, November 16, 2001 12:03 PM

Re: Need EFA advice

 

 

> Sorry, forgive me. I didn't make myself clear. My son does not eat

> spinach, broccoli, cauliflower or any green leafy veggies. He has on

> occasion eaten a few peas, (read one or two) and carrots. That's it for

> veggies. He is willing to eat apples, bananas and cantalopes, that's

> totally it for the fruit department. The only grain he eats is rice. He

> gets to drink rice milk or water, no juice because the concentrated sugar

> can make his gut problems worse. So we are talking an incredibly limited

> diet between what will not set off his autism symptoms and what he is

> willing to eat.

 

Hi Avril,

 

Hug, Hug, HUG.

 

Nothing to be sorry about.

 

How do you manage to give your son a good daily dose of vits & minerals?

 

Will he drink smoothies?

 

Can you give me a few good links to become more familiar with autism? I may be

able to offer some advise, once I more

fully understand what you are dealing with.

 

What foods / nutrients cause him problems?

 

Greg :-((

[Guest guest]

-

" Avril Dannenbaum " <lorned

 

Friday, November 16, 2001 12:03 PM

Re: Need EFA advice

 

 

> >It seems too high in Omega 6s. Isn't the right balance 2:1 of Omega 3 to

> >Omega 6?

> >

> >Comments anyone? I'd really like to try it except for this concern.

 

Hi Avril,

 

Are you aware of this recent research paper:

 

=============

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & list_uids=1\

1487301 & dopt=Abstract

Prostaglandins Leukot Essent Fatty Acids 2001 Jul;65(1):1-7 Related Articles,

Books, LinkOut

Plasma fatty acid levels in autistic children.

Vancassel S, Durand G, Barthelemy C, Lejeune B, Martineau J, Guilloteau D,

Andres C, Chalon S.

Laboratoire de Nutrition et Securite Alimentaire, INRA, domaine de Vilvert,

78352 Jouy-en-Josas cedex, France.

vancasse

 

Phospholipid fatty acids [these are the cell membrane fatty acid structures..gw]

are major structural components of

neuronal cell membranes, which modulate membrane fluidity and hence function.

 

Evidence from clinical and biochemical sources have indicated changes in the

metabolism of fatty acids in several

psychiatric disorders.

 

We examined the phospholipid fatty acids in the plasma of a population of

autistic subjects compared to mentally

retarded controls.

 

Our results showed a marked reduction in the levels of 22: 6n-3 [DHA..gw] (23%)

in the autistic subjects, resulting in

significantly lower levels of total (n-3) polyunsaturated fatty acids (PUFA)

(20%), without significant reduction in the

(n-6) PUFA series, and consequently a significant increase in the (n-6)/(n-3)

ratio (25%).

 

These variations are discussed in terms of potential differences in PUFA dietary

intake, metabolism, or incorporation

into cellular membranes between the two groups of subjects.

 

These results open up interesting perspectives for the investigation of new

biological indices in autism. Moreover, this

might have new therapeutic implications in terms of child nutrition.

 

PMID: 11487301 [PubMed - indexed for MEDLINE]

=====================

 

Omega 3 DHA is VERY important to the brain and is found there in very high

levels (much higher than in other cells) and

thus if autistic folks have a inability to convert DHA from EPA (actually EPA >

DPA > DHA) then maybe supplementation

with DHA will help.

 

I would suggest a red blood cell fatty acid analysis would be a good investment

and will then form a marker to see if

dietary supplementation will improve cell membrane levels.

 

Greg

[Guest guest]

Dear Avril,

I have been thinking of this for some time so let me tell it to you.

 

There are a lot of similiarities to some of the symptoms of autism and

fibromyalgia, autoimune snd others.

 

As to the symptoms of damage to the intestines, have you read about

kefir. Most people eho are lactose intolerant can drink it because the

lactose is converted to lactic acid and other. It is predigested and

easy on the intestions.

 

It acts a repair mechanism on the intestines and a source of B

vitamins from the flora induced into the gut. (It has huge amounts of

beneficial good flora. Much more than probiotics)

 

I may be wrong but I am only trying to help.

 

I have seen it work and have heard of a lot of stories from the kefir

list of healing of candida type overgrowths etc. It personally worked

for me, when I had a major problem with my intestines.

 

P.S. ** For others on this list who have cancer. I don't personally

know about this but, there have ben studies done in Japan on the

polysachride in kefir called kefiran that has been shown to be

somewhat effective against tumor growth.

 

Frank

 

 

Gettingwell, Avril Dannenbaum <lorned@n...> wrote:

> At 08:57 AM 11/16/2001 +1030, you wrote:

> >-

> > " Avril Dannenbaum " <lorned@n...>

> ><Gettingwell>

> >Friday, November 16, 2001 3:09 AM

> > Need EFA advice

> >

> >

> >My son refuses to take Cod Liver Oil. Our pediatrician recommended

this

> >product.

> >

> >It seems too high in Omega 6s. Isn't the right balance 2:1 of

Omega 3 to

> >Omega 6?

> >

> >Comments anyone? I'd really like to try it except for this

concern.

> >

> >Hi Avril,

> >

> >The idea to balance Omega oils is not sound. What you need to

balance is

> >daily TOTAL Omega 6 & 3 intake. Normally the

> >Omega 6 linoleic acid (LA) in the oils is NOT needed.

> >

> >You will get sufficient Omega 6 LA from spinach, broccoli,

cauliflower,

> >most green leafy veggies & nuts. Most nuts are

> >very rich in Omega 6 LA. Some too rich. Walnuts are a good Omega

3 LNA

> >source.

>

> Sorry, forgive me. I didn't make myself clear. My son does not eat

> spinach, broccoli, cauliflower or any green leafy veggies. He has

on

> occasion eaten a few peas, (read one or two) and carrots. That's it

for

> veggies. He is willing to eat apples, bananas and cantalopes,

that's

> totally it for the fruit department. The only grain he eats is

rice. He

> gets to drink rice milk or water, no juice because the concentrated

sugar

> can make his gut problems worse. So we are talking an incredibly

limited

> diet between what will not set off his autism symptoms and what he

is

> willing to eat.

>

> I give him cashew and pear butter sandwiches on rice bread because I

can

> hide all of his supplements in it.

>

>

> >While Omega 3 LNA (from flax) can convert into the active form (EPA

& DHA)

> >the conversion is slow and inefficient. Some

> >studies have shown the average conversion to be around 2 - 3 %.

> >

> >Direct dietary Omega 3 EPA & DHA is a much better pathway.

> >

> >Have you tried Cod Liver oil capsules?

>

> He is unable to swallow capsules.

>

> >You should also be able to get enteric coated ones which don't

dissolve until

> >they get into the intestines and thus no fishy after taste.

>

> Well, I guess the answer to my question is that the Childlife EFAs

is

> probably the best thing to take, all things considered. Forgive me

if I

> sound like a nay-sayer, it's just we have been down this road many

> times. My son is recovering from autism. Him and kids like him are

> extremely limited in diet. The fact is that he is unable to eat

gluten,

> casein, corn and soy, and needs to stay low phenols, meaning quite a

few of

> the veggies, even if he would eat them would set him off. In

addition, he

> needs enzyme supplements to even be able to digest his food.

>

> I'm sorry. I'm used to the autism lists where all the parents

understand

> the dietary problems, I don't think I made myself clear enough when

I asked

> the question.

>

> Thank you again Greg. I do appreciate the time you have taken with

me.

>

> All the best,

>

> Avril, mom to Gerry (2/19/97)

[Guest guest]

At 01:22 PM 11/16/2001 +1030, you wrote:

>-

> " Avril Dannenbaum " <lorned

>

>Friday, November 16, 2001 12:03 PM

>Re: Need EFA advice

>

>

> > >It seems too high in Omega 6s. Isn't the right balance 2:1 of Omega 3 to

> > >Omega 6?

> > >

> > >Comments anyone? I'd really like to try it except for this concern.

>

>Hi Avril,

>

>Are you aware of this recent research paper:

 

Yes, I am aware of it. I receive the FEAT newsletter daily and it was

listed 8/7/01:

http://www.feat.org/scripts/wa.exe?A2=ind0108 & L=FEATNEWS & P=R3462

 

The FEAT Newsletter is incredibly comprehensive, sometimes mindboggling so.

 

><snip>

>=====================

>

>Omega 3 DHA is VERY important to the brain and is found there in very high

>levels (much higher than in other cells) and

>thus if autistic folks have a inability to convert DHA from EPA (actually

>EPA > DPA > DHA) then maybe supplementation

>with DHA will help.

 

Here is the product that we were supposed to use and trying to make my son

take it resulted in him getting bruised from struggling with my husband and me:

http://www.kirkmanlabs.com/products/specifications/Pro_DHA/Pro_DHA_90.htm

 

 

>I would suggest a red blood cell fatty acid analysis would be a good

>investment and will then form a marker to see if

>dietary supplementation will improve cell membrane levels.

 

We had an Essential Fatty Acid Panel done by Great Plains Lab back when we

were with the DAN practitioner, in August 2000. He was low in ALA,

Eicosatrienoic acid, Eicosapentaenoic Acid, Linolic Acid and Gamma Linolic

acid. We were unable to follow most of their recommendations, like

consuming vegetables and/or fish or taking fish

supplements. Unfortunately, Great Plains will not do testing unless there

is doctor's consent, and our current doctor can't/won't approve. I've been

trying to save up for a saliva test for celiac for Gerry, and I still

haven't come up with the $135. Things are just very tight moneywise and

our HMO has always refused to pay for any of the tests that have helped our

son. But we have been supplementing him daily with Flaxseed oil and

Evening Primrose Oil, and hopeful that has done more good than harm.

 

Thanks again, Greg. I guess you might be feeling my frustration about not

being able to comply with research. I've tried several times to train him

to swallow pills, and I can only hope as he gets older he will develop that

skill.

 

Avril, mom to Gerry (2/19/97)

[Guest guest]

At 01:08 PM 11/16/2001 +1030, you wrote:

>-

> " Avril Dannenbaum " <lorned

>

>Friday, November 16, 2001 12:03 PM

>Re: Need EFA advice

<snip>

 

>How do you manage to give your son a good daily dose of vits & minerals?

 

There are specialists in autism who have done a great deal of research in

the biochemistry of autism. One such specialty lab is Kirkman.

http://www.kirkmanlabs.com/

My son takes their Everyday vitamin. They are famous for their Super Nu

Thera vitamin compound, but we didn't try it because it has a reputation

for creating hyperactivity, something which is easily triggered in our son:

Each two capsules contain

Vitamin A (Acetate) 2500 IU

Vitamin D 200 IU

Vitamin E 30 IU

Vitamin C 60 mg.

Vitamin B-1 3 mg.

Riboflavin (B-2 Phosphate) 3.4 mg.

Niacinamide 20 mg.

Vitamin B-12 12 mcg.

Pantothenic Acid 10 mg.

Folic Acid 400 mcg.

Biotin 300 mcg.

Magnesium (Glycinate/Citrate/Oxide) 25 mg.

Calcium (Citrate/Carbonate/Chelate) 50 mg.

Zinc (Citrate) 15 mg.

Selenium (Chelate) 35 mcg.

Vitamin B-6 (as Hydrochloride) 2 mg.

Pyridoxal 5 Phosphate (P5P) 2 mg.

Manganese (Citrate) 1.5 mg.

Taurine 40 mg.

L-Glutamine 40 mg.

Choline Bitartrate 14 mg.

 

http://www.kirkmanlabs.com/products/specifications/DailyVitamin/EveryDay_125_C_S\

pec.htm

 

We ran out to the minerals that our DAN doctor had prescribed so I took the

bottle to our Health Food Store and did my best to duplicate whatever was

there.

 

 

>Will he drink smoothies?

 

No, he seems to have sensory issues regarding soft foods. I long for the

day when he will eat my homemade soups. But sometimes he will eat a fake

pizza (rice crust, spaghetti sauce and ground beef, *no* cheese) and I use

a sauce with extra veggies in it. But tomatoes are high in phenols, so we

only do this as a treat.

 

 

>Can you give me a few good links to become more familiar with autism?

 

I'll put my links below. And give you a little more background on us as well:

 

My son has autistic enterocolitis which we believe was brought on by the

thimerosol in vaccines. This form of autism is based in the gut and it's

inability to digest food, leading to overgrowths of candida and other

fungi. When first tested, Gerry had 10 times the normal amount of

Clostridium usually found in the gut. A urinary peptide test revealed high

amounts of caseomorphine and gliadorphin. This meant that neurotoxins from

undigested proteins were most likely leaving his intestines, entering the

blood and crossing the blood brain barrier. Not to be too graphic, but it

was like a heroin addict shooting up with every meal. And this was how he

acted from the time he was 18 months to when he finally received meaningful

treatment at the age of 3.5 years. What is usually found after the child

detoxes from gluten and casein, is that more food sensitivities are

unmasked. The most common ones are soy and corn. And if he eats a diet

high in phenols, he becomes hyperactive and aggressive. Right now, his

mind is normal, but just one cracker and he gets stoned and his guts get

further damaged. The last time he had soy, he bit me. And the last time

he ate ketchup, he pushed a little girl off the top of a 4 foot ramp, thank

goodness she wasn't seriously hurt.

 

Gerry was helped by the DAN (Defeat Autism Now) protocol. The emphasis is

on supplements and dietary change based on testing. Gerry responded well

to the protocol, but we were broke after 3 months of expensive testing and

$1,000 office visits, and had to wing it on our own for over a year with no

doctor. We have recently found a doctor on our HMO who understands these

biological interventions. Unfortunately, he does not follow the protocol,

so he recommends supplements for normal kids which I then have to check out.

 

> I may be able to offer some advise, once I more

>fully understand what you are dealing with.

>

>What foods / nutrients cause him problems?

 

Gluten, casein, soy, corn, sugar, and then anything high phenol, in general

the more color and smell a vegetable or fruit has the more phenols it

contains. But there are conflicting reports depending whether one goes

with Feingold (US) or Dengate (AUS) diets. Also, some children are okay

with amines, but can't handle salicylates, or visa versa just to further

confuse things.

 

Here are some sites which might help you understand what is going on with

my son. There are hundreds of sites, but I hope these will be useful:

http://www.house.gov/reform/hearings/healthcare/00.06.04/wakefield.pdf

http://www.house.gov/reform/hearings/healthcare/00.06.04/

http://www.gastrohep.com/news/news.asp?id=384

http://www.healing-arts.org/children/autism-overview.htm

http://members.aol.com/autismndi/PAGES/PMarticl.htm

http://home.pacbell.net/cscomp/dmain.htm

Autism-MercuryMercury-Autism%20FAQ#OtherWay\

s

http://home.pacbell.net/cscomp/phenol.htm

http://www.neuroimmunedr.com/Articles/Autism___PDD/New_Definition/new_definition\

..html

http://www.feingold.org/home.html

 

Ironically, I originally had hoped to pursue the Megson Protocol which is

based on Cod Liver Oil therapy. But getting CLO into my son without

leaving numerous bruises on his body was impossible. So we do our best to

get whatever we can get into him. So far, especially since using enzymes,

we have made wonderful progress. Mentally he is quite well, but sadly, his

bowels have never normalized except for brief periods of time. He'll be

five in a few months, but is still in pull up diapers.

 

You might enjoy reading Dr. Megson's findings:

http://www.autism.com/ari/megson.html

 

Thank you again for taking so much time with this. I hope that I haven't

sent too many websites. Hmm, I just realized that maybe I should stay away

from Childlife EFA and just go to Kirman Labs. I want to please this new

doctor, but I can't afford to waste money on a company making vitamins for

neurotypical children. Thank you, I think I shall purchase my EFA from

Kirkman.

 

All the best,

 

Avril, mom to Gerry (2/19/97)

[Guest guest]

-

" Avril Dannenbaum " <lorned

 

Friday, November 16, 2001 4:38 PM

Re: Need EFA advice

 

 

> But we have been supplementing him daily with Flaxseed oil and

> Evening Primrose Oil, and hopeful that has done more good than harm.

 

Hi Avril,

 

What does he like to drink?

 

Will he drink a smoothie?

 

Most tablets can be ground into powder with a mortar & pestle and capsules can

be cut and the liquid added to fluids.

 

Try adding the ground supplements and liquid into strong tasting foods and

liquids.

 

There is always a solution, I'm sure we can find one..........

 

Can you fax me his fatty acid analysis on (801) 838-6454? I will get it as a

email attachment.

 

PS: Beyond A Century can supply most nutrients in powder form. They are a good

company to deal with. I make up my own

capsules from their powders.

http://www.beyond-a-century.com

 

With respect,

Greg

[Guest guest]

Gettingwell, Avril Dannenbaum <lorned@n...> wrote:

> At 06:13 PM 11/15/2001 -0500, you wrote:

> ><< My son refuses to take Cod Liver Oil.>>

> >

> >Try Carlson's lemon-flavored cod liver oil or salmon oil capsules

from wild,

> >deep ocean salmon sources.

> >

> >Rob

>

> Thanks for the suggestions but I've got 3 different bottles of CLO

in my

> fridge. I don't have the money to keep trying. Plus he is unable

to

> swallow capsules or pills.

>

> All the best,

>

> Avril

 

Hi Avril,

Have you ever tried putting it in his food? I use flaxseed oil in

my dips and smoothies and it tastes great! Flaxseed oil is high in

the EFAs and is similar to cod liver oil in consistency. Spectrum is

an excellent brand.

Blessings, JoAnn

 

JoAnn Guest

joguest

http://joannguest.tripod.com/CancerAnswer

http://canceranswer.homestead.com/Goodfoods.html

[Guest guest]

At 08:32 PM 11/16/2001 +1030, you wrote:

>-

> " Avril Dannenbaum " <lorned

>

>Friday, November 16, 2001 4:38 PM

>Re: Need EFA advice

>

>

> > But we have been supplementing him daily with Flaxseed oil and

> > Evening Primrose Oil, and hopeful that has done more good than harm.

>

>Hi Avril,

>

>What does he like to drink?

 

He drinks water and rice milk. He likes Mango Mama (this is an apple,

orange and mango juice smoothie put out by a local juice maker) which is

not allowed anymore on our doctor's advice, just as he likes chocolate

milk, again on the no-no list. I could add cocoa powder to rice milk but

then the night sweats, the dark phenol circles under is eyes and

hyperactive behavior will come back. It's really hard to give your son

something that he reacts to just in order to get him to take a supplement.

 

In the mornings we give him probiotics and FOS mixed in water. We have to

pry his jaws open and force it into his mouth and most of it goes down his

front. I really hate doing it! But probiotics need to be given on an

empty stomach so mixing it with food is out.

 

 

>Will he drink a smoothie?

>

>Most tablets can be ground into powder with a mortar & pestle and capsules

>can be cut and the liquid added to fluids.

>

>Try adding the ground supplements and liquid into strong tasting foods and

>liquids.

 

We already open his capsules of flaxseed oil and evening primrose oil and

mix it with the powders of his vitamins, minerals and enzymes into cashew

and pear butter rice bread sandwiches. This has been working well for us.

 

 

>There is always a solution, I'm sure we can find one..........

 

As I said, I think the solution is to go with Kirkman's EFA. The problem

with a smoothie is that it would be thicker than water and the only times

he has drunk something like that was Mango Mama which is way too acidic for

his stomach and has too much sugar according to our doctor.

 

 

>Can you fax me his fatty acid analysis on (801) 838-6454? I will get it

>as a email attachment.

 

Sure Greg, I'd be glad to. Just a caveat that this test is over 15 months

old and does not reflect all the really good dietary changes and the

progress we have made in that time. So it would be a baseline of him in an

autistic, pre-supplement state.

 

 

>PS: Beyond A Century can supply most nutrients in powder form. They are a

>good company to deal with. I make up my own

>capsules from their powders.

><http://www.beyond-a-century.com>http://www.beyond-a-century.com

 

Okay, do they have the phyto-nutrients which he may be lacking because he

doesn't eat veggies?

 

Thanks again for all your time, I'll send the fax this pm, for whatever

it's worth. Mind you, there are many causes to autism and if he had the

inability to utilize non-animal sources of Vitamin A as Megson suggests,

he wouldn't have recovered as well as he has. It seems that we are doing

very well at the moment w/out using Cod Liver Oil,indicating that his body

has been able to at lease somewhate use the supplements we are currently

giving him. Our main problem right now is getting his gut to function again.

 

All the best and your interest is greatly appreciated,

 

Avril

[Guest guest]

At 03:41 AM 11/16/2001 +0000, you wrote:

>Dear Avril,

>I have been thinking of this for some time so let me tell it to you.

>

>There are a lot of similiarities to some of the symptoms of autism and

>fibromyalgia, autoimune snd others.

 

I agree with you 100 percent.

 

 

>As to the symptoms of damage to the intestines, have you read about

>kefir. Most people eho are lactose intolerant can drink it because the

>lactose is converted to lactic acid and other. It is predigested and

>easy on the intestions.

 

The question here would be does it contain casein?

 

 

>It acts a repair mechanism on the intestines and a source of B

>vitamins from the flora induced into the gut. (It has huge amounts of

>beneficial good flora. Much more than probiotics)

>

>I may be wrong but I am only trying to help.

 

Thank you so much, Frank! I will check this out

 

 

>I have seen it work and have heard of a lot of stories from the kefir

>list of healing of candida type overgrowths etc. It personally worked

>for me, when I had a major problem with my intestines.

>

>P.S. ** For others on this list who have cancer. I don't personally

>know about this but, there have ben studies done in Japan on the

>polysachride in kefir called kefiran that has been shown to be

>somewhat effective against tumor growth.

 

We are using an FOS right now and are hoping for good gut healing.

 

>A word about Arabinogalactan...

>Arabinogalactan (AG) is a naturally occurring carbohydrate present in most

>plant life including common human food items such as lettuce, tomatoes,

>spinach, and radishes. As such, the human body is pre-adapted to AG. The

>FDA approved AG in the 1960's for use as a food additive. Larex uses

>absolutely no solvents other than water in its patented extraction process.

>http://www.larex.com/htm/cleartra_r.html

 

But, I fear that his Clostrium may have returned, in which case all of

these therapies might actually make things worse since killing off the

Candida will allow the Clostridium to flourish and eat further into his gut

wall. Dr. Shaw from Great Plains lab is quite clear on the need to

identify which gut critters are causing the problems because of this danger.

 

Thank you again, Frank. I will investigate further.

 

All the best,

 

Avril

[Guest guest]

At 05:09 PM 11/16/2001 +0000, you wrote:

<snip>

 

>Hi Avril,

> Have you ever tried putting it in his food? I use flaxseed oil in

>my dips and smoothies and it tastes great! Flaxseed oil is high in

>the EFAs and is similar to cod liver oil in consistency. Spectrum is

>an excellent brand.

> Blessings, JoAnn

>

>JoAnn Guest

 

Thanks JoAnn,

 

Yes, this is exactly what we are doing. He has flaxseed oil and EPO mixed

into his cashew and pear butter sandwich everyday.

 

Many thanks,

 

Avril, mom to Gerry (2/19/97)

[Guest guest]

-

" JoAnn Guest " <joguest

 

Saturday, November 17, 2001 3:39 AM

Re: Need EFA advice

 

 

> Hi Avril,

> Have you ever tried putting it in his food? I use flaxseed oil in

> my dips and smoothies and it tastes great! Flaxseed oil is high in

> the EFAs and is similar to cod liver oil in consistency. Spectrum is

> an excellent brand.

 

Hi JoAnn,

 

Just understand Cod Liver Oil has the active Omega 3 fats EPA & DHA while flax

oil has their precursor (raw material)

Omega 3 LNA which does convert into Omega 3 EPA & DHA but VERY slowly and at

only about 2 - 3 % efficiency. Most of

your flax oil is burnt for fuel so about 97 % of the Omega 3 LNA is wasted.

 

At least using ground flax, you get phytoestrogens and good cholesterol lowering

fibre.

 

That's why I use BOTH ground flax and Omega 3 EPA & DHA capsules or fatty fish.

 

Greg

[Guest guest]

-

" Avril Dannenbaum " <lorned

 

Saturday, November 17, 2001 4:20 AM

Re: Need EFA advice

 

 

> >What does he like to drink?

>

> He drinks water and rice milk. He likes Mango Mama (this is an apple,

> orange and mango juice smoothie put out by a local juice maker) which is

> not allowed anymore on our doctor's advice, just as he likes chocolate

> milk, again on the no-no list. I could add cocoa powder to rice milk but

> then the night sweats, the dark phenol circles under is eyes and

> hyperactive behavior will come back. It's really hard to give your son

> something that he reacts to just in order to get him to take a supplement.

>

> In the mornings we give him probiotics and FOS mixed in water. We have to

> pry his jaws open and force it into his mouth and most of it goes down his

> front. I really hate doing it! But probiotics need to be given on an

> empty stomach so mixing it with food is out.

 

Can you email me what he would eat and drink over say 3 days? I will do a

nutritional analysis for you.

 

The digestive problem may be helped by using free form amino acids which don't

need digestion from dietary protein and

will give your son a full complement of the amino acids he needs. I'm sure you

know amino acids are the raw building

blocks of the body and without sufficient amino acids, a lots of otherwise

healthy systems will find it difficult to

work properly.

 

A lack of digestive enzymes is one effect as these enzymes are composed of amino

acids. Sort of like a " Catch 22 " .

Don't get enough digested amino acids from protein and you can't make enough

digestive enzymes to break down food so you

have a lack of amino acids.

 

I see getting your son a full complement of amino acids as a good starting

place. No sense fighting a body which is low

in amino acids.............

 

Here is a like for a good company which supplies a complete amino acid mix based

on " Free Amino acids " . This could help

your soon to reboot his systems. I use their free form amino acids myself.

 

These aminos can go directly into the blood and are ready to be the building

blocks of your sons body.

 

Free Form Amino Acids

http://www.jomarlabs.com/20blend.asp

 

I would suggest mixing 1/2 teaspoon of the aminos in water three times a day.

Have you tried STEVIA to " Sweeten "

drinks?

 

STEVIA Extract, very highly concentrated! Helpful dietary supplement for lo-carb

diets. Used in South America for

centuries, in Japan for decades, stevia again is allowed by the FDA. They say it

cannot be sold as a " sweetener, food

additive or herb " (!); only as a " dietary supplement " (that happens to be

200-250 times sweeter than sugar!)

" Bureaucratic thinking " is an oxymoron! Heat does not affect it. Stevion brand

has improved sweetness by enzyme reaction

and no licorice-like aftertaste.

50 grams, $7.75. Code 709.0

 

http://www.beyond-a-century.com under " Special Products " ?

 

How much does you son weight? What is his muscle development like?

 

What medication & supplements is he using?

 

Greg