Please help me - MND(Monto Neuro Disease) and FTD (Fronto Temporary Dementia)

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Hi All,

This is Sarat Kumar from Hyderabad, INDIA.

My Father Mr. IAN Raju is a 56 year man suffering with

MND(Monto Neuro Disease) and FTD (Fronto Temporary

Dementia).My father has blurring in the voice since 11

months and disturbance in hand writing and a

little memory loss and a light problem in reading.And

the main problem is with blurring voice and when he

drinks water he is getting cough sometimes.i.e.,

problem in drinking water. He is not speaking now.

Hope little swallowing problems are also there now.

Hope research is going on so this disease has

definitely a cure or atleast prevention.

Already we used RILUZOLE. But due to some other side

effects we just stopped it. Please let me know how to

stop from further progression of this Disease.

As we are from INDIA we don't have any organizations

for ALS People and also no financial support or any

other support.If one is there please let me know.

So Please let me know whenever researchers find a

treatment which is useful for the Patients.

 

And let me know any type of information which is

useful for my father like respiratory care,

getting rid of swallowing problems etc which are next

steps in the disease.

 

Let me know any Alternate Treatment which are useful

for these Patients. Presently my father is undergoing

Ayurvedic Treatment

 

Medicines using since 1 month are:

1) Ashwagandharishtam -- first 15 days and after

that Saraswatharishtam

2) Yogendra Ras

3) Bhrama Rasayanam

4) Dhanadanayadi Kashayam

5) Sarawatha Gritham

6) Anda Thailam, Some other unnamed thailam

 

Thanks & Regards,

Sarat Kumar